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What does she suggest for those of us for whom Pancrecarb is the ONLY enzyme that works? We've exhausted creon, pancrease...and there have been others. Would you PM me her e-mail or other contact information, please? I've stayed quiet on this so far, watching to see what would happen. We...

What does she suggest for those of us for whom Pancrecarb is the ONLY enzyme that works? We've exhausted creon, pancrease...and there have been others. Would you PM me her e-mail or other contact information, please? I've stayed quiet on this so far, watching to see what would happen. We...

What does she suggest for those of us for whom Pancrecarb is the ONLY enzyme that works? We've exhausted creon, pancrease...and there have been others. <br /> <br />Would you PM me her e-mail or other contact information, please? I've stayed quiet on this so far, watching to see what would...

I have a pill case that I got at a purse party a few years ago. It holds about 15 enzymes, OR, 7 enzymes and the other 3 things Em takes at dinner time. We also have a few of the little plastic ones that the enzymes companies give away at CF ed nights and the walks. Those are great to throw...

I have a pill case that I got at a purse party a few years ago. It holds about 15 enzymes, OR, 7 enzymes and the other 3 things Em takes at dinner time. We also have a few of the little plastic ones that the enzymes companies give away at CF ed nights and the walks. Those are great to throw...

I have a pill case that I got at a purse party a few years ago. It holds about 15 enzymes, OR, 7 enzymes and the other 3 things Em takes at dinner time. We also have a few of the little plastic ones that the enzymes companies give away at CF ed nights and the walks. Those are great to throw...

This is very exciting! I hope the trip goes well. What an opportunity for those sibs! This is something I can see my older daughter doing someday. Although, I dearly hope she won't have to!

This is very exciting! I hope the trip goes well. What an opportunity for those sibs! This is something I can see my older daughter doing someday. Although, I dearly hope she won't have to!

This is very exciting! I hope the trip goes well. What an opportunity for those sibs! This is something I can see my older daughter doing someday. Although, I dearly hope she won't have to!

Oh man. How did I not know this? I use onions CONSTANTLY, and Emily is always helping me in the kitchen. Guess I'll start treating them as though they were raw chicken. Uuugh. Thanks for the post!

Oh man. How did I not know this? I use onions CONSTANTLY, and Emily is always helping me in the kitchen. Guess I'll start treating them as though they were raw chicken. Uuugh. Thanks for the post!

Oh man. How did I not know this? I use onions CONSTANTLY, and Emily is always helping me in the kitchen. Guess I'll start treating them as though they were raw chicken. Uuugh. Thanks for the post!

Emily has a MicKey button and gets 3 cans of Pediasure Enteral Formula 5 nights a week. Three cans totals 711 calories. We also add powdered baby formula to the bag to add about an extra 80 calories. We'll be switching soon to 1 1/2 cans Pediasure 1 1/2 cans Ensure (I think). Calorie count...

Emily has a MicKey button and gets 3 cans of Pediasure Enteral Formula 5 nights a week. Three cans totals 711 calories. We also add powdered baby formula to the bag to add about an extra 80 calories. We'll be switching soon to 1 1/2 cans Pediasure 1 1/2 cans Ensure (I think). Calorie count...

Emily has a MicKey button and gets 3 cans of Pediasure Enteral Formula 5 nights a week. Three cans totals 711 calories. We also add powdered baby formula to the bag to add about an extra 80 calories. <br /> <br />We'll be switching soon to 1 1/2 cans Pediasure 1 1/2 cans Ensure (I think)...

I don't know how I missed this for 3 days... First, a ((((hug)))). This is the hardest part of CF. Trying to heip them cope in a way that sets them up to be confident, mature, emotionally "with it" adults some day, without having them hate us as kids. Second, I am totally grinning at the "I...

I don't know how I missed this for 3 days... First, a ((((hug)))). This is the hardest part of CF. Trying to heip them cope in a way that sets them up to be confident, mature, emotionally "with it" adults some day, without having them hate us as kids. Second, I am totally grinning at the "I...

I don't know how I missed this for 3 days... <br /> <br />First, a ((((hug)))). This is the hardest part of CF. Trying to heip them cope in a way that sets them up to be confident, mature, emotionally "with it" adults some day, without having them hate us as kids. <br /> <br />Second, I am...

That "push the button" system always makes me shake my head.

That "push the button" system always makes me shake my head.