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thanks for your replies!! i called her clinic and they said in very rare instances the symptoms that i described can happen and certain children cannot tolerate the pulmicort. they are taking her off it to see if things get better. wow!! is all i can say for the past couple days....i just want...

thanks for your replies!! i called her clinic and they said in very rare instances the symptoms that i described can happen and certain children cannot tolerate the pulmicort. they are taking her off it to see if things get better. wow!! is all i can say for the past couple days....i just want...

thanks for your replies!! i called her clinic and they said in very rare instances the symptoms that i described can happen and certain children cannot tolerate the pulmicort. they are taking her off it to see if things get better. wow!! is all i can say for the past couple days....i just want...

my daughter started pulmozyme at 3 weeks of age (immediatly after diagnosis), she is currently enrolled in the hts clinical trial and will most likely be officially starting hypertonic saline in december when the trial is over. she also did not show any pulmonary signs when they started her on...

my daughter started pulmozyme at 3 weeks of age (immediatly after diagnosis), she is currently enrolled in the hts clinical trial and will most likely be officially starting hypertonic saline in december when the trial is over. she also did not show any pulmonary signs when they started her on...

my daughter started pulmozyme at 3 weeks of age (immediatly after diagnosis), she is currently enrolled in the hts clinical trial and will most likely be officially starting hypertonic saline in december when the trial is over. she also did not show any pulmonary signs when they started her on...

ok, long story short (or as short as possible)....my daughter was pretty sick 2 weeks ago and was put on oral prednisone for one week (then taken off) and pulmicort .5mg/2ml 2x daily ongoing thru winter. in the past week and a half since she has recovered she has turned into a little monster...

ok, long story short (or as short as possible)....my daughter was pretty sick 2 weeks ago and was put on oral prednisone for one week (then taken off) and pulmicort .5mg/2ml 2x daily ongoing thru winter. in the past week and a half since she has recovered she has turned into a little monster...

ok, long story short (or as short as possible)....my daughter was pretty sick 2 weeks ago and was put on oral prednisone for one week (then taken off) and pulmicort .5mg/2ml 2x daily ongoing thru winter. in the past week and a half since she has recovered she has turned into a little monster...

i was told by a cf doc that a person must have clubbed fingers before toes???? ....i was asking him about my daughters "weird little toes" and he wouldnt even look at them, he just looked at her fingers and told me that? what do you make of that???

i was told by a cf doc that a person must have clubbed fingers before toes???? ....i was asking him about my daughters "weird little toes" and he wouldnt even look at them, he just looked at her fingers and told me that? what do you make of that???

i was told by a cf doc that a person must have clubbed fingers before toes???? ....i was asking him about my daughters "weird little toes" and he wouldnt even look at them, he just looked at her fingers and told me that? what do you make of that???

im a single parent, and when my mom takes my daughter overnight (usually once a month) it is definatley a chore!! she does have an extra nebulizer, i always make sure she has enzymes at her house and syringes for meds thru the gtube on hand. but i do have to transport her vest and meds in...

im a single parent, and when my mom takes my daughter overnight (usually once a month) it is definatley a chore!! she does have an extra nebulizer, i always make sure she has enzymes at her house and syringes for meds thru the gtube on hand. but i do have to transport her vest and meds in...

im a single parent, and when my mom takes my daughter overnight (usually once a month) it is definatley a chore!! she does have an extra nebulizer, i always make sure she has enzymes at her house and syringes for meds thru the gtube on hand. but i do have to transport her vest and meds in...

just throwing this out there.....my daughter had the nissen/fundo and gtube placement at 4months old...she is now almost 3. never had a problem with coughing during feeding at night until recent and they found it is actually a post nasal drip that is causing the cough when she lays down. do you...

just throwing this out there.....my daughter had the nissen/fundo and gtube placement at 4months old...she is now almost 3. never had a problem with coughing during feeding at night until recent and they found it is actually a post nasal drip that is causing the cough when she lays down. do you...

just throwing this out there.....my daughter had the nissen/fundo and gtube placement at 4months old...she is now almost 3. never had a problem with coughing during feeding at night until recent and they found it is actually a post nasal drip that is causing the cough when she lays down. do you...

thanks everyone...we made it through the first night which they said would be the worst. it wasnt as bad as i thought it would be. they gave her pulmicort and orapred. the "goose" noises seem sporadic, not a continual cough, but when it starts she wretches and gags horribly. she seems alot...

thanks everyone...we made it through the first night which they said would be the worst. it wasnt as bad as i thought it would be. they gave her pulmicort and orapred. the "goose" noises seem sporadic, not a continual cough, but when it starts she wretches and gags horribly. she seems alot...