Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. B

    antibiotics in short supply

    I know some of the meds I use are not available in the hosp I go to so I bring in my own , except of course IV abx. I was having problems getting Amikasin (inhaled abx) & then found it through a different supplier.
  2. B

    antibiotics in short supply

    I know some of the meds I use are not available in the hosp I go to so I bring in my own , except of course IV abx. I was having problems getting Amikasin (inhaled abx) & then found it through a different supplier.
  3. B

    Boiling nebs?

    I get the white residue also but use the nebs w/ it on them. I have 4 sets of nebs per med. so I dont have to boil nebs every day. It's important to use soap & water before you boil them !
  4. B

    Boiling nebs?

    I get the white residue also but use the nebs w/ it on them. I have 4 sets of nebs per med. so I dont have to boil nebs every day. It's important to use soap & water before you boil them !
  5. B

    Can smell the bacteria......

    I dont think i've ever smelled my lungs, but i have smelled my sinuses & when i get a whiff of a strong odor it stays w/ me a long time... yucky ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  6. B

    Can smell the bacteria......

    I dont think i've ever smelled my lungs, but i have smelled my sinuses & when i get a whiff of a strong odor it stays w/ me a long time... yucky ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  7. B

    Wednesday Night Chat Reminder !

    Hope to see you in chat tonight <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  8. B

    Wednesday Night Chat Reminder !

    Hope to see you in chat tonight <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  9. B

    Surprising results

    Hi Vera, Sounds like the drs. are on the right track having you in a pulmonary program. My fev1 was about 51 for a while & I wanted to get my #'s up so I asked my primary care physician (he is also a pulmo dr.) for a script for pulmonary rehab.. I love it ! I had 2 private sessions w/ the RT...
  10. B

    Surprising results

    Hi Vera, Sounds like the drs. are on the right track having you in a pulmonary program. My fev1 was about 51 for a while & I wanted to get my #'s up so I asked my primary care physician (he is also a pulmo dr.) for a script for pulmonary rehab.. I love it ! I had 2 private sessions w/ the RT...
  11. B

    Big advancement in the fight against cystic fibrosis

    Great news ! Any new developments are great .. Thanks for sharing <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  12. B

    Big advancement in the fight against cystic fibrosis

    Great news ! Any new developments are great .. Thanks for sharing <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  13. B

    Wednesday Night Chat Time ...

    Hope you can make it into chat. Tonight, 8PM EST ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  14. B

    Wednesday Night Chat Time ...

    Hope you can make it into chat. Tonight, 8PM EST ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  15. B

    Turning Point

    In a word , Yes I would use it ! If it takes us closer to a cure damn straight I would . Thats all <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  16. B

    Turning Point

    In a word , Yes I would use it ! If it takes us closer to a cure damn straight I would . Thats all <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  17. B

    Wednesday Night Chat !

    Just a reminder about our Wednesday night chat.. Tonight @ 8pm EST. Come in & have some fun ! Give or get support ! We would love to see you there ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  18. B

    Wednesday Night Chat !

    Just a reminder about our Wednesday night chat.. Tonight @ 8pm EST. Come in & have some fun ! Give or get support ! We would love to see you there ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  19. B

    Best birth control?

    Hi Fae, Yes, I think you should talk to your pulmo (they should prob know just about everything going on w/ you) Have you discussed it with your gynecologist ? You should know what all your options are & what risks each option has.. You are being responsible by asking questions.. Take care <img...
  20. B

    Best birth control?

    Hi Fae, Yes, I think you should talk to your pulmo (they should prob know just about everything going on w/ you) Have you discussed it with your gynecologist ? You should know what all your options are & what risks each option has.. You are being responsible by asking questions.. Take care <img...
Top