Cystic Fibrosis Forum (EXP)

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  1. T

    Muscle and Joint Pain/severe exhaustion

    I get muscle and joint pain directly from infection and feeling "feverish", as well as when having digestive cramps, ..as well as the hours after having to cough up a lot fe. in the morning and while doing nebuliser treatments, i think this also has to do with straining more muscles than you are...
  2. T

    Muscle and Joint Pain/severe exhaustion

    I get muscle and joint pain directly from infection and feeling "feverish", as well as when having digestive cramps, ..as well as the hours after having to cough up a lot fe. in the morning and while doing nebuliser treatments, i think this also has to do with straining more muscles than you are...
  3. T

    What song do you relate your CF fight to

    My personal favourite has always been Opeth-Ghost of perdition At the moment maybe Novembre-Aquamarine which I listened to recently in struggling, just because being underwater I often associate with fighting CF, and because it's pretty. :)
  4. T

    tiny arms

    As for fat storage I believe hormones play a significant part in that, where testosteron (mostly male) generally makes fat to go to belly back and upper body and estrogen (mostly female) generally makes fat go to thighs butt arms and so on. (notice the generallies) However above some level fat...
  5. T

    tiny arms

    As for fat storage I believe hormones play a significant part in that, where testosteron (mostly male) generally makes fat to go to belly back and upper body and estrogen (mostly female) generally makes fat go to thighs butt arms and so on. (notice the generallies) However above some level fat...
  6. T

    Do you enjoy hospital stays?

    Usually get hit on by one nurse or another, so in that sense I don't mind hospital stays much. Though I think they do it on purpose, might even be written in my patient log. As I tend to make it a sport to not tell nurses anything, I find they will use any trick to confuse me and make me talk...
  7. T

    Do you enjoy hospital stays?

    Usually get hit on by one nurse or another, so in that sense I don't mind hospital stays much. Though I think they do it on purpose, might even be written in my patient log. As I tend to make it a sport to not tell nurses anything, I find they will use any trick to confuse me and make me talk...
  8. T

    Do you enjoy hospital stays?

    Usually get hit on by one nurse or another, so in that sense I don't mind hospital stays much. <br />Though I think they do it on purpose, might even be written in my patient log. As I tend to make it a sport to not tell nurses anything, I find they will use any trick to confuse me and make me...
  9. T

    drinking alcohol

    Well, there's always quality of life vs quantity, and we all work very hard to give ourselves some quality of life. Once in a while enjoying alcohol in moderation can be a personal choice that becomes possible because we work so hard and probably goes with the first category. And in all honesty...
  10. T

    drinking alcohol

    Well, there's always quality of life vs quantity, and we all work very hard to give ourselves some quality of life. Once in a while enjoying alcohol in moderation can be a personal choice that becomes possible because we work so hard and probably goes with the first category. And in all honesty...
  11. T

    drinking alcohol

    Well, there's always quality of life vs quantity, and we all work very hard to give ourselves some quality of life. Once in a while enjoying alcohol in moderation can be a personal choice that becomes possible because we work so hard and probably goes with the first category. And in all honesty...
  12. T

    Mucous colors

    Typically yes, when your body produces mucus it's almost transparent but becomes darker as it sits there. Various colors green to brown from bacteria doing stuff to it and in it. ..For me and from my experience, transparent, great! "fresh" thin mucus and the lungs are at ease, no reaction etc...
  13. T

    Mucous colors

    Typically yes, when your body produces mucus it's almost transparent but becomes darker as it sits there. Various colors green to brown from bacteria doing stuff to it and in it. ..For me and from my experience, transparent, great! "fresh" thin mucus and the lungs are at ease, no reaction etc...
  14. T

    Mucous colors

    Typically yes, when your body produces mucus it's almost transparent but becomes darker as it sits there. Various colors green to brown from bacteria doing stuff to it and in it. <BR>..For me and from my experience, transparent, great! "fresh" thin mucus and the lungs are at ease, no reaction...
  15. T

    Drummer with CF

    Ah, was referring to those open pads you have on a rack on the side, what are they? So if you're limited in playing as you go back to college why not get an e-kit on the side? They lack depth, feel and a real kit is magnitudes better to play but it's something you like to do, good for your...
  16. T

    Drummer with CF

    Ah, was referring to those open pads you have on a rack on the side, what are they? So if you're limited in playing as you go back to college why not get an e-kit on the side? They lack depth, feel and a real kit is magnitudes better to play but it's something you like to do, good for your...
  17. T

    Drummer with CF

    Ah, was referring to those open pads you have on a rack on the side, what are they? <br /> <br />So if you're limited in playing as you go back to college why not get an e-kit on the side? They lack depth, feel and a real kit is magnitudes better to play but it's something you like to do, good...
  18. T

    Nursing bras

    ..Can I say that while opening cysticfibrosis.com this morning I jumped a hole in the air finally seeing the CF topic I always wanted to discuss, nurse's bra's, only to find when clicking on it it's in pregnancy and not even close to what I had imagined. (I'm Dutch I can make the mistake.)
  19. T

    Nursing bras

    ..Can I say that while opening cysticfibrosis.com this morning I jumped a hole in the air finally seeing the CF topic I always wanted to discuss, nurse's bra's, only to find when clicking on it it's in pregnancy and not even close to what I had imagined. (I'm Dutch I can make the mistake.)
  20. T

    Nursing bras

    ..Can I say that while opening cysticfibrosis.com this morning I jumped a hole in the air finally seeing the CF topic I always wanted to discuss, nurse's bra's, only to find when clicking on it it's in pregnancy and not even close to what I had imagined. (I'm Dutch I can make the mistake.) <BR>
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