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Just an FYI, on Wednesday, my wife delivered our second son--a healthy 7lb 13oz boy. God bless IVF. If anyone has any questions re: IVF, I have become somewhat of an expert :)

I'm psyched. Dr. Wilt (at Columbia) holds a panel seminar once a year and has 4 or 5 post TX patients on a panel to answer questions from the pre TX patients. When I was sick and I went to this seminar, I thought it was so helpful and hopeful. On tuesday, Dr. Wilt asked me if I wanted to be on...

Just to reiterate what I just wrote in another thread...I have a brand new vest I received a few months before my TX and I've been trying to give it away for free to someone. I'm not sure what shipping would be. It's a HillRom.

I have to say that I thought I was living life to the max post TX. But after watching that movie, it is clear to me that the fear of dying isn't as strong in me anymore, and so, the willingness to live life like I was dying isn't as strong. Watching this movie reminded me of how fragile I used...

<a target=_blank class=ftalternatingbarlinklarge href="http://news.yahoo.com/s/yblog_localnyc/20101201/ts_yblog_localnyc/new-york-pioneers-pilot-program-in-manhattan-to-increase-number-of-donations?bouchon=501,ny">http://news.yahoo.com/s/yblog_...nations?bouchon=501,ny</a>

Columbia now has a NEW PFT machine. I went in on Tuesday and did my PFT's on the old machine and had the same numbers. Then on the new machine, my FEV1 dropped 20 points! Now, I understand that it's relative and I've been told that all patients have had this, but it seems like a pretty big...

Hi Everyone, We just wanted to check in and let everyone know that we're gearing up for the 2nd Annual Breathe for a Cause Road Race. I have been blogging on this past year and Tim's recovery including his victory at the NYC Marathon. I have also posted pics from this past year's road race...

I'm not sure if it will be live, but on Tuesday, the 16th, at 7am, me and my surgeon will be calling into the "Doctors" station on Sirius to discuss CF, Transplant, and running the NYC Marathon. Very cool stuff <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hey Everyone, Breathe announces children size tee-shirts. Boys are light blue, and girls are in purple. All children shirts are short sleeve. Check out the site and help support the CF foundation. www.breatheforacause.com Thanks, everyone!!!

Hi everyone, As some of you may know, I am going to be running in the 2010 NYC Marathon along with my surgeon from Columbia, Dr. Sonett less than a year out from my TX. I am running this race to raise awareness for CF and organ donation. I am in the process of trying to get the word out for...

I'm walking on sunshine! Whoa! Whoa! I'm walking on sunshine! Whoa! Whoa! In terms of insulin demand, it's amazing what happened when I went from 12.5mgs to 10mgs. My insulin went down to almost nothing. If they (they meaning the powers that be) lower me one more time, I think I'll be done...

As many know, Pulmozyme can clog the Eflow, and make it work slower and less effective. My solution was to have 2 heads and use one for pulmo and the other for albuterol and tobi. The result is a very slow moving pumlo, but the albuterol and tobi are fast and effective. The way I got 2 heads...

<a target=_blank class=ftalternatingbarlinklarge href="http://health.yahoo.net/articles/healthcare/best-hospitals-2010-11-honor-roll">http://health.yahoo.net/articl...als-2010-11-honor-roll</a>

Hey Everyone, Sunday was the First Annual Breathe for Cystic Fibrosis Road Race that my wife organized in honor of me receiving a double lung TX back in November. It was a 4 mile race and I finished it (without stopping! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) There...

Here's a video of me when I competed about 10 years ago. <a target=_blank class=ftalternatingbarlinklarge href="http://video.google.com/videoplay?docid=-7495256426476577648#">http://video.google.com/videop...=-7495256426476577648#</a>

Where are the calls? I know how aggressive they can be <img src="i/expressions/face-icon-small-smile.gif" border="0">

I know everyone here is interested in my fingernail update, so here it goes. Pre TX I had some deep ridges in my nails. I could run my nail over another and it sounded like a musical instrument. Now, about 5 months post TX, the ridges have "grown" out. It was weird. At one point you could...

Calls are coming! I'm not psychic or anything...I'm just wishing, dammit!

Just curious what you guys who are years post TX are taking for your maintenance prednisone dose. I'm on 12.5mgs at about 4 months out, and I'm finding that it's still raising my blood sugars. Thanks.

Hey Everyone... Turns out there was a glitch on the site when it went live. The web designer has fixed it. If anyone bought a tee-shirt to support the CF Foundation, please revisit the site as that order was never received. Thanks and we're sorry for the hassle. Lex www.breatheforacause.com