Cystic Fibrosis Forum (EXP)

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  1. Y

    Should I call clinic?

    i would call and explain the situation. i always consider that it is the doctor's job to decide what to do, i just need to explain the timing, to describe the symptoms etc. I also try to culture if my dd is coming down with something or starts coughing, just to make sure it is not a new bug or...
  2. Y

    Should I call clinic?

    i would call and explain the situation. i always consider that it is the doctor's job to decide what to do, i just need to explain the timing, to describe the symptoms etc. I also try to culture if my dd is coming down with something or starts coughing, just to make sure it is not a new bug or...
  3. Y

    Should I call clinic?

    i would call and explain the situation. i always consider that it is the doctor's job to decide what to do, i just need to explain the timing, to describe the symptoms etc. I also try to culture if my dd is coming down with something or starts coughing, just to make sure it is not a new bug or...
  4. Y

    UGH....It is the flu!!!

    we get flu shot every year and inspite of that my dd w/cf (and me) gets the flu anyway but it is in mild form. From what i heard the flu short is only 50% effective. The complications I usually look for is congestion, wet cough etc. Actually when mine had the flu it started like you described...
  5. Y

    UGH....It is the flu!!!

    we get flu shot every year and inspite of that my dd w/cf (and me) gets the flu anyway but it is in mild form. From what i heard the flu short is only 50% effective. The complications I usually look for is congestion, wet cough etc. Actually when mine had the flu it started like you described...
  6. Y

    UGH....It is the flu!!!

    we get flu shot every year and inspite of that my dd w/cf (and me) gets the flu anyway but it is in mild form. From what i heard the flu short is only 50% effective. <br />The complications I usually look for is congestion, wet cough etc. Actually when mine had the flu it started like you...
  7. Y

    Help Please!

    Here is a response from a european perspective: 1) <b>Did your baby have any symptoms when diagnosed</b>? No , my dd (3 y/o) did not have any respiratoty symptoms when diagnosed (via neonatal screening). Even now you would not know she has CF, she coughs when sick with a cold, that is all. 2)...
  8. Y

    Help Please!

    Here is a response from a european perspective: 1) <b>Did your baby have any symptoms when diagnosed</b>? No , my dd (3 y/o) did not have any respiratoty symptoms when diagnosed (via neonatal screening). Even now you would not know she has CF, she coughs when sick with a cold, that is all. 2)...
  9. Y

    Help Please!

    Here is a response from a european perspective: <br /> <br />1) <b>Did your baby have any symptoms when diagnosed</b>? No , my dd (3 y/o) did not have any respiratoty symptoms when diagnosed (via neonatal screening). Even now you would not know she has CF, she coughs when sick with a cold, that...
  10. Y

    chickening out!

    definitely don't give up. All those symptoms do sound like CF and many patients have very low sweat test numbers and still have CF. Did they just run a panel as a genetic test? If so, you should ask for the complete test which covers all know mutations. Good luck and keep us posted
  11. Y

    chickening out!

    definitely don't give up. All those symptoms do sound like CF and many patients have very low sweat test numbers and still have CF. Did they just run a panel as a genetic test? If so, you should ask for the complete test which covers all know mutations. Good luck and keep us posted
  12. Y

    chickening out!

    definitely don't give up. All those symptoms do sound like CF and many patients have very low sweat test numbers and still have CF. Did they just run a panel as a genetic test? If so, you should ask for the complete test which covers all know mutations. Good luck and keep us posted
  13. Y

    Recurrent Pink Eye

    my 3 y/o often gets it and she was prescribed antibiotic drops too. She gets it b/c she keeps rubbing her eyes, touching her face etc, not sure what would cause it in an adult
  14. Y

    Recurrent Pink Eye

    my 3 y/o often gets it and she was prescribed antibiotic drops too. She gets it b/c she keeps rubbing her eyes, touching her face etc, not sure what would cause it in an adult
  15. Y

    Recurrent Pink Eye

    my 3 y/o often gets it and she was prescribed antibiotic drops too. She gets it b/c she keeps rubbing her eyes, touching her face etc, not sure what would cause it in an adult
  16. Y

    Texture Issues

    my dd is 3 and she used to be like that too. Would jus gag on anything unmashed but would eat bread etc fine. I was also very worried but with all we have to handle cf related did not have time to attend to this issue. Now she is 3 and i feel that it has become less of an issue so have faith!
  17. Y

    Texture Issues

    my dd is 3 and she used to be like that too. Would jus gag on anything unmashed but would eat bread etc fine. I was also very worried but with all we have to handle cf related did not have time to attend to this issue. Now she is 3 and i feel that it has become less of an issue so have faith!
  18. Y

    Texture Issues

    my dd is 3 and she used to be like that too. Would jus gag on anything unmashed but would eat bread etc fine. I was also very worried but with all we have to handle cf related did not have time to attend to this issue. Now she is 3 and i feel that it has become less of an issue so have faith!
  19. Y

    All natural!

    I give lemon water to my dd several times a day. I found it helped reduce congestion. I also give her coconut oil, flaxseed oil and tumeric (sprinkled on food)
  20. Y

    All natural!

    I give lemon water to my dd several times a day. I found it helped reduce congestion. I also give her coconut oil, flaxseed oil and tumeric (sprinkled on food)
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