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I would expect that from a gen pedi, but not from a pulm at an accredited CF center. He also dismissed max's chest X-ray findings as normal. ( peri-hilar infiltrates, hyper-inflation, and peribronchial cuffing) I was also very frustrated that the bowel symptoms were disregarded. Pulm said not cf...

Max is 21 months old. Will try more layers next time. We had a space heater on in the room plus had him wrapped in a fleece blanket. Next time will dress for snow : ) The pulm visit today left me feeling frustrated. While I am glad he didn't feel max has CF, I feel like my concerns were...

I took my son for a sweat test last week, but it was a bust because no sweat was collected in the little tubes. The room was hot and his head was sweaty, but no sweat on the arms! Has anyone ever heard of this?? We go for our first visit with the pulmonologist tomorrow, so we'll see if he...

thank you, bill. our appt is with a CF specialist. hopefully, we will find some answers.

Thank you so much for your response. The pulmonologist we are seeing is at an accredited CF center. I called and spoke to the nurse today who was kind enough to work us in for an earlier appt! I am hoping to get a sweat test before then from our pediatrician. Hopefully, we will know a little...

hi all! i'm sure you have a lot of concerned momma's on here asking questions about their babies symptoms. sorry to be another one, but i need some feedback... my son is 20 months old and has had recurrent bouts of wheezing and coughing since the age of 5 months. we have had 2 ER visits and 1...