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I'm seriously considering medicinal marijuana for chronic pain but I'll be damned if I'll smoke ANYTHING! If I do decide to pursue this, I would only do it under the auspices of my completemedical team. Smoking, in my humble opinion is absolutely the worse thing a CF patient could do to...

Hi Autumn! Thank you for your well-wishes, I appreciate that. Yea, the flight was really the only part of the whole drama that Isomewhat enjoyed. It was beautiful flying over the mountains of Central Idaho. There is a window in the rear doors of the Bell 429 (the helicopter we flew in is a...

Hey! Well, I had a real good time in Idaho visiting my Mom & family. I was there for a bit over a month; Jan 3rd until February 11th. I had started thinking about pointing my truck south when I got horribly sick. It all started on a Wednesday night, Thursday morning. I woke up around 1 AM...

I'd say that's pretty normal. I've always had to drink lots of water after doing Tobi or Colistin.

I just spent a week in the hospital in Boise. During that time, a colonoscopy was ordered. I hadn't eaten in 5 days & still had to do a 'clean-out'. While doing that, I messed my bed no less than 10 times. I was buck-ass naked in front of 2 different woman while they were changing my bed &...

I am recovering from yet another CF induced 'incident'. I live in AZ but am in ID visiting family on an extended stay. I contracted several blood-borne bacteria that caused renal failure & almost killed me. My Wife was forced to fly up to be with me because the docs weren't so sure I was going...

I have had tinitis as long as I can remember. I'm sure part of it is due to listening to heavy equipment too long, but most is due to meds. I'm on Tobi bi-monthly & I've heard anti-rejection drugs can cause hearing issues. I don't think cystic fibrosis is the cause of hearing problems...

I'm sorry you're having so much pain. I had my transplant back in '05 & like you, I thought everything was going to be fantastic. Well, the one thing the doctors & Transplant Coordinator neglected to tell me about was all of the side-effects. I never was diabetic until post-trans. Because of...

I always take acidophillus (spelling?) every day because I'm on a regimen of Tobi for one month followed by a month of Colistin. Hope this helps.

One more thing I'd like to add; NO MATTER HOW BAD YOU THINK YOU HAVE IT, ALL YOU HAVE TO DO IS LOOK AROUND. YOU CAN ALWAYS FIND SOMEONE WHO HAS IT WORSE'. That has sustained me through quite a bit.

While I'm not in my 50's (yet) I guess I could be categorized as a 'CF Old Fart'. I was born right in the middle of family of 7 kids. I think the fact that Dad was in the Army when I was born was a good thing. I received all the best care available at that time. My Mom was the primary...

I'm so sorry for your loss. You & your family are in my thoughts & prayers. All of us that live with this affliction are in this together. When we lose one, we all feel it regardless of whether we personally knew the person or not. Please accept my sincere condolences. Your son is at the Right...

I've taken my meds with me everywhere I've been ever sine the 1st grade. Of course, I grew up in a much different time, thank God. I think way too much responsibility is taken from kids today. Just an old fart speaking his mind; it's worth exactly what you paid for it, I'm sure.

I've never been into 'Organized Religion' but I am most assuredly a Believer. I don't know how anyone who has a life threatening/altering disease like CF can be 'without' God. Personally, I couldn't do it. I recognize that all good things in my life are a direct result of His intervention. I...

Please be careful with the tanning booths: you can contract melanoma by too much exposure. If you just use a bit of common sense you should be OK. Good luck...

Take calcium supplements! My CF DR put me on a calcium supplement & I now have to cut my nails sometimes twice a week; it's a real pain! I hate cutting my nails but I hate having broken nails even worse so I keep them short. Its the same with my toe nails. They've been growing horribly fast &...

I just take my 'script as directed. It is 50,000 units & I take it twice weekly. Since I've already had melanoma, I really don't want to subject myself to any lamp. I don't have a clue if the lamp you mentioned can cause skin cancer, I'm not in any hurry to find out. I'd like to know why it is...

They are both at the top of my prayers list. God is great; He will see them through.:)

Thank you! I'll call my GP tomorrow. I really appreciate that info. ;)

I guess I should have mentioned I'm doing Colistin via nebulizer, not IV. Thank you for your input. I have to do Tobi via SVN bi-monthly. That leaves a terrible taste in my mouth too. It also messes with my voice. I'm pretty disappointed to have to get out the ol' SVN machine after going...