Cystic Fibrosis Forum (EXP)

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  1. E

    Does this mean i am getting better?

    Does it come up in pudding-like globs? This was recent occurrence for me as well, also felt like hemoptysis. Doc says it's a good thing, which I figured. There's a good chance it could be beneficial to stay on IVs. But I'd definitely run it by your doc/nurse.
  2. E

    Does this mean i am getting better?

    Does it come up in pudding-like globs? This was recent occurrence for me as well, also felt like hemoptysis. Doc says it's a good thing, which I figured. There's a good chance it could be beneficial to stay on IVs. But I'd definitely run it by your doc/nurse.
  3. E

    Does this mean i am getting better?

    Does it come up in pudding-like globs? This was recent occurrence for me as well, also felt like hemoptysis. Doc says it's a good thing, which I figured. There's a good chance it could be beneficial to stay on IVs. But I'd definitely run it by your doc/nurse.
  4. E

    anyone had to have an upper right lobe removed???

    I had an upper right lobectomy 22 years ago, when I was 11. It wasn't a pleasant experience besides the cool get well gifts I got. Which is how my dad coaxed me into getting the surgery. Bribery works on kids. I hear the whole procedure and recovery is less intense nowadays. Basically I was...
  5. E

    anyone had to have an upper right lobe removed???

    I had an upper right lobectomy 22 years ago, when I was 11. It wasn't a pleasant experience besides the cool get well gifts I got. Which is how my dad coaxed me into getting the surgery. Bribery works on kids. I hear the whole procedure and recovery is less intense nowadays. Basically I was...
  6. E

    anyone had to have an upper right lobe removed???

    I had an upper right lobectomy 22 years ago, when I was 11. It wasn't a pleasant experience besides the cool get well gifts I got. Which is how my dad coaxed me into getting the surgery. Bribery works on kids. I hear the whole procedure and recovery is less intense nowadays. <br />Basically I...
  7. E

    What is the best way to steralize and clean nebs?

    I bought this microwave one from Amazon for $7, it's cheap b/c it doesn't need any heating elements, just uses the microwave. You just put a little water in and microwave for 4 minutes or so. "Luvable Friends Four Bottle Microwave Sterilizer with 1 Bottle (8 oz)" Also CF services sent a whole...
  8. E

    What is the best way to steralize and clean nebs?

    I bought this microwave one from Amazon for $7, it's cheap b/c it doesn't need any heating elements, just uses the microwave. You just put a little water in and microwave for 4 minutes or so. "Luvable Friends Four Bottle Microwave Sterilizer with 1 Bottle (8 oz)" Also CF services sent a whole...
  9. E

    What is the best way to steralize and clean nebs?

    I bought this microwave one from Amazon for $7, it's cheap b/c it doesn't need any heating elements, just uses the microwave. You just put a little water in and microwave for 4 minutes or so. <br />"Luvable Friends Four Bottle Microwave Sterilizer with 1 Bottle (8 oz)" <br /> <br />Also CF...
  10. E

    stomach constantly hurts

    Have you tried probiotics? You may have other issues going on but I've had gut-wrenching pain when I'm on antibiotics and don't have probiotics.
  11. E

    stomach constantly hurts

    Have you tried probiotics? You may have other issues going on but I've had gut-wrenching pain when I'm on antibiotics and don't have probiotics.
  12. E

    stomach constantly hurts

    Have you tried probiotics? You may have other issues going on but I've had gut-wrenching pain when I'm on antibiotics and don't have probiotics.
  13. E

    cf "inventions"

    cf Well, after chiming in as a drummer on the music project, I guess I'll come out here and admit I'm a mechanical engineer too. Though that doesn't mean I can whip an invention together easily. The only thing I can picture for now is a full head apparatus similar to the retainers of the old...
  14. E

    cf "inventions"

    cf Well, after chiming in as a drummer on the music project, I guess I'll come out here and admit I'm a mechanical engineer too. Though that doesn't mean I can whip an invention together easily. The only thing I can picture for now is a full head apparatus similar to the retainers of the old...
  15. E

    cf "inventions"

    cf Well, after chiming in as a drummer on the music project, I guess I'll come out here and admit I'm a mechanical engineer too. Though that doesn't mean I can whip an invention together easily. The only thing I can picture for now is a full head apparatus similar to the retainers of the old...
  16. E

    Partner having fears of being alone

    Thanks Printer for the encouragement, however that 83 year old person was born before CF was even discovered, as were you I suppose, and life expectancy was like 5. So that person is obviously an anomaly. Do you have delayed or mild CF? Were you hospitalized a lot as a kid or young adult? I...
  17. E

    Partner having fears of being alone

    Thanks Printer for the encouragement, however that 83 year old person was born before CF was even discovered, as were you I suppose, and life expectancy was like 5. So that person is obviously an anomaly. Do you have delayed or mild CF? Were you hospitalized a lot as a kid or young adult? I...
  18. E

    Partner having fears of being alone

    Thanks Printer for the encouragement, however that 83 year old person was born before CF was even discovered, as were you I suppose, and life expectancy was like 5. So that person is obviously an anomaly. Do you have delayed or mild CF? Were you hospitalized a lot as a kid or young adult? I...
  19. E

    Partner having fears of being alone

    Lisa, so how do you get over it? Or do you just let the moment pass. I don't think all this time apart is good for us, we spend more time Thinking about the relationship rather than Experiencing and enjoying it.
  20. E

    Partner having fears of being alone

    Lisa, so how do you get over it? Or do you just let the moment pass. I don't think all this time apart is good for us, we spend more time Thinking about the relationship rather than Experiencing and enjoying it.
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