This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Wondering if anyone has any experience with Salt Rooms? A new one just opened up in the St. Louis, MO area and I send the info to our pulm to get his reaction. The owners opened because their 9 year old daughter had severa asthma and he told me that they have several individuals with CF who...
I am would like to create a shirt design in honor of my son to be used for the CF bowl-a-thon and Great Strides walk. I have been looking online and don't really like the ones I have seen cafepress.com and have been trying to look through people's blogs to find a hidden shirt somewhere, but it...
I haven't been on here in a while, but was wondering about two things so thought I would just ask "the experts"!
First off - my son got his vest at 10 months - my pulm said as soon as he measured 17" he could get it and he measured 17.5" - it is fabulous and we love it! Just wondering if...
We are newly diagnosed through amnio and are considering receiving CF care through St. John's Mercy in Creve Coeur, MO. We have an appointment set up with the ped. pulmonologist in a few weeks. I know St. John's has excellent pediatric docs in all of the areas that we could need and I have a...
Hello - I not not entirely new to this site as we had a scare w/ CF a few years ago when my daughter was born. We found out when we were prego that my husband and I both carry the Delta F508 gene. God blessed us with a healthy daughter. We had her cord blood tested and she is not even a...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.