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If you go to www.cff.org and look at the drug pipeline. it tells you the results. the results say for whoever has double DF508
Results from two Phase 3 trials in people with CF who have two copies of the F508del CFTR mutation showed significant improvement in lung function and other key...
I was on the Tobi Podhaler 2 months ago, it lowered my pfts, and my chest was so tight from it and I was coughing a lot, and then I started to run fevers. so I decided to change to the tobi inhaled. and it doesn't give me any problems
"Hey My name is Chelsie and im 24 Female and i live in New Mexico. I have CFRD(Cystic Fibrosis Related Diabetes) it is really hard to work with both of these issues because you have to gain weight for having CF and then you have to watch what you eat being a diabetic, well i go to the gym 6days...
I'm so sorry for your loss and exactly know what your going through. I'm 24 and female and lost my 28yr old brother Chris is September 2011. He struggled for 28yrs of his life and loved sports. You would think all the basketball that he played his lungs would be in great shape, but he also had...
Hello,
My name is Chelsie
I used to be the same way, i was really healthy when i was younger, wasnt hospitalized till i was like 16 and pfts were in the 60's. im 24 now and my pfts are 43%.
What i do, i get up and drink some coffee to keep my sugar steady long enough to do treatments in the...
pulmozyme
"Hey my name is Chelsie, for my pulmozyme i go through primetheraputic pharmacy i used to go through Trissent. you ca give them a call and see if they will take your insurance"
1-877-627-6337
OMG im so sorry to hear for everybodys loss! I myself had a brother who passed September 27, 2012. Not long ago at all. His name was Chris and 28yrs old. I miss him so much, My mom said she isnt in the holiday spirit this year. Its been so rough for my mother, she lost her mother Ausgust 2011...
I know exactly how you ladies feel out there that are scared due to CF and Pregnancy! Im a 24yr old female. When i look in the past and in the future, all my bestfriends have grown up and have kids. Am i a jealous one, i am. Because i do want a kid. I have a boyfriend that i have been with for...
Cayston i think is a way better treatment then Tobi, Tobi takes like 30mins to do. Cayston has a different machine and it only takes 1min to do. You are on for a month then off a month just like Tobi. I have been on cayston for about 3yrs now. i love it. Cayston does make me cough, but that is a...
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