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JennyC summed it up: "CF is silent and unnoticeable until the damage is done." Exactly. It took me going to the hospital and the doctor saying directly to my husband "I know she looks like nothing's wrong with her... " I even needed to hear that. You get used to coughing and just never...

Great question WW... I diligently juice as part of my daily treatments. Carrot/apple/celery is really good, or carrots with a couple of oranges. Makes a huge difference in my lungs. I've experimented with this for years, and once I got off the juicing (and water) was when my lungs went down...

Ditto. Deb and others are right, EXERCISE is crucial. Heavy duty. Don't let your job/career, make you cut back like I did. And you have to love it, or you won't find the time to do it. Also tons of water, green tea, and Carrot/apple or orange, and other combinations. Get a good juicer, and...

Good for you! I also have had a hard time keeping "compliant." Still do. Coming onto the full blown cf scene late, it put a real dent in my schedule. For me getting up super early, sitting quietly with coffee, (so I get in a good mood) and THEN doing the pulmozyme, etc is the only thing...

He's only 6? Is it possible to get a second opinion? Doctors mean well but they're not always right.

Yes I did. And there was a time in my 30's that I was really good about getting at least 3 bottles (at work) in me, but then my career started being more and more demanding, plus we drove up to a family farm on the weekends and worked. So I burned the candle for 7 days a week, for over 10...

Some really good posts here..., and I totally agree. Medical journals, etc are out of date concerning CF. (they have been my entire life) and it does depend on the person and how they respond. Your CF team will help you but use your own common sense. Meds do not cure....and again, cf is...

This will be quick because i've got to get back to work, but let me just say your blog, "childofprayer.com" is wonderful. The Lord is good, and there is a reason and place for every child. I will read more and comment later! I so commend your courage and faith for taking this little girl on...

Monds1234, don't give up. Always after I've had an infection I'm coughing my head off in ballet class, but I go as far as I can, then rest a day and go again. These are advanced ballet classes, so there's a lot of running and jumping (grande' jetes, etc.) It's brutal, esp after being sick...

Hi Everyone... EM, I'll tell you what makes a HUGE difference with me. This is something my doctor always rolls her eyes at, (altho she can't deny, at my age, I'm doing something right!) This simple thing works not just for my joints, but for my lungs too: drinking at least 1 to 2 pitchers of...

I'm 52, and was told in 2008 that I had the "DD." And I did not start out PI. At all. Prior to this my mutation was always "unknown" and that could be from going to different clinics, I don't know. What I do know it that I was diagnosed at 5 only because my brother was born with a severe...

Hi Spacemom, Sorry it took me so long to answer! If anyone else emailed me, please try again, and I will answer.....changed servers and in the process "lost" a ton of emails (people called me and let me know.) Not sure what happened, as I am not a super techy, but anyway....please try again...

Hi Spacemom, Sorry it took me so long to answer! If anyone else emailed me, please try again, and I will answer.....changed servers and in the process "lost" a ton of emails (people called me and let me know.) Not sure what happened, as I am not a super techy, but anyway....please try again...

Hi Spacemom, Sorry it took me so long to answer! If anyone else emailed me, please try again, and I will answer.....changed servers and in the process "lost" a ton of emails (people called me and let me know.) Not sure what happened, as I am not a super techy, but anyway....please try again...

Hi Spacemom, Sorry it took me so long to answer! If anyone else emailed me, please try again, and I will answer.....changed servers and in the process "lost" a ton of emails (people called me and let me know.) Not sure what happened, as I am not a super techy, but anyway....please try again...

Hi Spacemom, Sorry it took me so long to answer! If anyone else emailed me, please try again, and I will answer.....changed servers and in the process "lost" a ton of emails (people called me and let me know.) Not sure what happened, as I am not a super techy, but anyway....please try again...

Hi Maryann, I am a christian and I have a definite opinion on abortion: I'm 47, with a mild case of CF, have never fought CF (not really) but fought the medical community at every turn. Heres the thing: just because you and your husband are carriers does not mean you will automatically have...

Hi Maryann, I am a christian and I have a definite opinion on abortion: I'm 47, with a mild case of CF, have never fought CF (not really) but fought the medical community at every turn. Heres the thing: just because you and your husband are carriers does not mean you will automatically have...

Hi Maryann, I am a christian and I have a definite opinion on abortion: I'm 47, with a mild case of CF, have never fought CF (not really) but fought the medical community at every turn. Heres the thing: just because you and your husband are carriers does not mean you will automatically have...

Hi Maryann, I am a christian and I have a definite opinion on abortion: I'm 47, with a mild case of CF, have never fought CF (not really) but fought the medical community at every turn. Heres the thing: just because you and your husband are carriers does not mean you will automatically have...