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I have read elsewhere that some docs or ENTs have suggested to some people to put vinegar in their sinus saline rinse ... I have Pseudos. Aerug. btw. Can anyone here tell me more like for example : does it sting, does it really work, any side effects, quantity of vinegar for a 240 ml bottle, is...

Hi everyone, I will be traveling to China shortly (for business) and I am wondering if you guys have any tips on how to make traveling easier with all the stuff we need to bring (healthwise). Like for example the sinus saline rinses : I do 3 per day. That would be 16 days in China x 3 bottles...

Hello everyone. I am panicked because I had a culture done in Jan. 2014 and my mucoid PA was sensible to all antibiotics. I just had a bronchoscopy and now it is resistant to certain antibiotics that I've never taken !!! And Cayston (Aztreonam) that I have been ONLY using for a bit over a year...

Hi, I am confused ... After an exacerbation with Pseudos and 14 days of Levaquin and Cayston, I am still spitting green mid-day ... Should it be white ? Will it get white after some time just on Cayston/Colymycin ? I feel generally better, less sputum altogether, but it is still green mid-day...

Hi ! My voice has extremely changed (raucous) ever since TOBI and I have a bit trouble talking. I am not taking TOBI anymore (don't tolerate it) but still have that problem, I think Pulmozyme alterates the voice also, and probably all nebulized meds and cortico-steroids. Any suggestions how to...

Hi ! Do all 5 pieces of the handset go in the baby bottle sterilizer or are there pieces that cannot withstand the heat ??? RDT

Hi everyone ! I just started Pulmozyme on Dec. 31 and yesterday, I started having pain in my lungs. This morning the soreness is worst plus my lungs were tight, and I had shortness of breath. Has anyone else had this ??? I read the possible side effects and these are listed but I wonder if I...

I use the same one than with TOBI (Pari LC Plus + Devilbiss Pulmoaide) but I am wondering if it is the best one to use (# of psi?) ... I used to use a MedPro with a standard nebulizer that comes with it but since I switched, the treatment times have been shorter but I wonder which nebul + comp...

I've read here that lots of people sterilize their nebs with a baby bottle sterilizer. What brands are the best (Nuk, Nuby, etc.) ? I want to buy the best one. RDT.

Hello ! For those of you using Pulmozyme (once daily), when do you do it (in the morning, before breakfast, during your lunch hour, in the afternoon, before supper, just before bed, etc.) ? In which order do you do it (just before antibio, etc.) ? Any long term side effects (alteration of...

Hi, Can I get a flu shot if I'm on Cipro and Coly-Mycin ??? RDT.

Hi everyone, We are thinking of having another baby. We have a 10 yo daughter and at the time, my trts were easier and quicker. It now takes 4-4.5 hours a day and I wonder if I'll be able to juggle the trts + a new baby ... How did you guys/gals do it ? Any hints ? RDT.

Hi ! For those of you who have used or are using Cayston, have you found it better than TOBI (for mucoid PA) ? What side effects did you get (same as TOBI : altered voice, bronchospasm, tightness, etc. ?) ? No studies have been done with Cayston for drug interactions ... Should I be worried...

Feeling extremely sorry for myself this pm ... Once and a while, I surf the net hoping that someone somewhere will find a cure for PA and it seems that NOTHING is on the way besides old antibios developped to neb and that do NOT cure PA, just reduce the number :( Does anyone know of something...

Hi everyone ! As some of you know, I am having trouble tolerating TOBI (tightness, wheezing, etc.). I thought of something this past week and I wanted to know what you all think :) FYI : I do Ventolin, Symbicort and Spiriva before my TOBI. I've never just nebbed 0,9 % Sodium Chloride (in my...

Hello, I've read that many sterilize their nebs with Baby Bottle Sterilizers. Is it really efficient to kill germs? It seems really practical ! What are the best brands ? RDT.

Hi everyone ! I'd like to start a new thread that discusses everything about nebbing antibios for PA : I'm wondering what kind of nebulizer/compressor you are all using with Coly-Mycin ... The same one than with TOBI ? Do you all have extra neb parts and how do you all wash/sterilize your...

Hello, I'm new to the forum :) Female and 41 yo. I had to stop the TOBI Podhaler after 2½ months, because it seemed I wasn't tolerating it at all. I just started the regular TOBI (300 mg) and it seems after !one day! that I am not tolerating it either !!! I have tightness in my lungs and I'm...