Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. R

    Low grade fevers....anyone?

    These lingering low grade fevers are driving me nuts. Seems when I had a rough day or a stressful day the low 99 fever pops up. Anyone else get these? And do you get them to go away before getting sick enough to go to the hospital?
  2. R

    First fund raiser a success!!!

    Hey everyone, just wanted to let you know...Shopforcf.com had its first fund raising event and it did very well. We managed to sell 26 bottles of Mike Schmidt Zinfandel wine from www.charitywines.com, which as you might know benefits the CF Foundation when a bottle is sold. A massive site...
  3. R

    Finally giving in and giving these a try............

    I decided this week after posting best in 4 yrs FEV1 numbers, I am going to try Oregano Oil (water soluable) and Glutathione capsules. Can someone help me out with doses on these?
  4. R

    So excited....just have to share....

    So, I got out of the hospital today, feeling great! Did my PFT's this morning and blew a 54% FEV1. Haven't had that high in I believe 4 years. So excited....Praise God!
  5. R

    Any of you heard of this???

    One of the 3 doc's that I see suggested that at some point I go in this year for a desensitization to some of the anti-biotics I am resistant too. I thought desensitizing was for allergic reactions?? Fill me in...
  6. R

    Never realized how bad it really was.....

    I stopped drinking so much soda, basically had 1/2 of a can today. I drank water in its place, and wow....its amazing the difference. I can cough up stuff so easy, my lungs feel nice and loose and not that horrible dry tight cough. I am a changed man.
  7. R

    Just a little fyi.....

    Just letting everyone know, I now offer services to build computers for people through www.shopforcf.com/store/store.htm These machines use very high quality parts and are warranteed through the manufacturers parts warranty. These will be much cheaper than store bought computers with much more...
  8. R

    What do you all do when traveling?

    Just wondering to what extent do you protect yourselves when taking a flight somewhere? My wife and I are taking a trip in April and I am a little worried about being in a plane for 5hrs with possible sick people. Should I just suck it up and wear a mask? Take extra vitamins? Any other ideas...
  9. R

    Want to publicly thank lightNlife

    Just want to thank you for the awesome right up on ShopforCF on your blog site. I really appreciate it, and the more people we get to the site to make purchases, the more it helps us all! Anyone looking to upgrade/replace that old computer you have, we offer custom built computers at <a...
  10. R

    Going to give one of these a try.....

    Just thought I would let everyone know I am going to do a very strict regimine and then review the Power Breath Lung Excerciser. <a target=_blank class=ftalternatingbarlinklarge href="http://198.173.242.241/powerbreath4.html">Power Breath</a> I will have the review up on my site in a few weeks...
  11. R

    I need all of you to help me out please!

    Hey everyone, I am finally back after a hospital stay and some recoup time. Over Christmas I came up with an idea to raise some serious money for CF. I dont want this to sound like a sales pitch, because this benefits me as much as it does you. You will see what I mean in a second. I created a...
  12. R

    The best way to dry your parts I found.....

    Just found an awesome way to dry our parts. With a salad spinner!!! It dries those suckers in a couple pumps of the handle, and away we go with dry clean parts. <img src="i/expressions/face-icon-small-happy.gif" border="0">
  13. R

    Newbie here......

    Just wanted to introduce myself. My name is Ronnie, I live in AZ with my beautiful wife. I am 25 yrs old w/CF (of course). Lived here pretty much all my life. Lived in Dallas for 5yrs in my late teenage years. As far as my CF goes, I am in the mid 50's in FEV1. I truly believe there is more...
Top