Cystic Fibrosis Forum (EXP)

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  1. J

    Anyone else having a tough time with their CF'er?

    I have an 11yo boy who is getting increasing obstinate when it comes to treatments! Turn your back on him for a second and he'll "cheek" or just outright expose of his oral meds. It's become absolutely necessary to sit with him during his VEST, huffs and nebs! I'm really getting frustrated...
  2. J

    Anyone having trouble with their hospital

    Let me start by saying hi to all! I am a father of an 11yo boy with fairly severe CF, recently we have been hospitalized 3 times in the last 10 months. I have become increasingly irritated with the staff, including doctors, respiratory techs, phlebotomist, and housekeeping not adhering to...
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