Cystic Fibrosis Forum (EXP)

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  1. C

    Pseudomonas

    My daughter just cultured Pseudomonas also. She is on Cipro and TOBI as well. She was already familiar with nebs b/c she's been on Pulmozyme and Xopenex for several months. We do Pulmozyme just to try to keep her lungs as clear as they have been and Xopenex when she gets a cough or cold. The...
  2. C

    Pseudomonas

    My daughter just cultured Pseudomonas also. She is on Cipro and TOBI as well. She was already familiar with nebs b/c she's been on Pulmozyme and Xopenex for several months. We do Pulmozyme just to try to keep her lungs as clear as they have been and Xopenex when she gets a cough or cold. The...
  3. C

    Pseudomonas

    My daughter just cultured Pseudomonas also. She is on Cipro and TOBI as well. She was already familiar with nebs b/c she's been on Pulmozyme and Xopenex for several months. We do Pulmozyme just to try to keep her lungs as clear as they have been and Xopenex when she gets a cough or cold. The...
  4. C

    Pseudomonas

    My daughter just cultured Pseudomonas also. She is on Cipro and TOBI as well. She was already familiar with nebs b/c she's been on Pulmozyme and Xopenex for several months. We do Pulmozyme just to try to keep her lungs as clear as they have been and Xopenex when she gets a cough or cold. The...
  5. C

    Pseudomonas

    My daughter just cultured Pseudomonas also. She is on Cipro and TOBI as well. She was already familiar with nebs b/c she's been on Pulmozyme and Xopenex for several months. We do Pulmozyme just to try to keep her lungs as clear as they have been and Xopenex when she gets a cough or cold. The...
  6. C

    What do you do for treatments and when did you start?

    Cammie is 19 months now and we are getting a vest in the next week or so. We've been doing manual CPT since she was 5 months. She has been doing albuterol (xopenex now) inhaler since she was around 7 or 8 months, but we only do it when she has a cold and/or cough. She's also been on Pulmozyme...
  7. C

    What do you do for treatments and when did you start?

    Cammie is 19 months now and we are getting a vest in the next week or so. We've been doing manual CPT since she was 5 months. She has been doing albuterol (xopenex now) inhaler since she was around 7 or 8 months, but we only do it when she has a cold and/or cough. She's also been on Pulmozyme...
  8. C

    What do you do for treatments and when did you start?

    Cammie is 19 months now and we are getting a vest in the next week or so. We've been doing manual CPT since she was 5 months. She has been doing albuterol (xopenex now) inhaler since she was around 7 or 8 months, but we only do it when she has a cold and/or cough. She's also been on Pulmozyme...
  9. C

    What do you do for treatments and when did you start?

    Cammie is 19 months now and we are getting a vest in the next week or so. We've been doing manual CPT since she was 5 months. She has been doing albuterol (xopenex now) inhaler since she was around 7 or 8 months, but we only do it when she has a cold and/or cough. She's also been on Pulmozyme...
  10. C

    What do you do for treatments and when did you start?

    Cammie is 19 months now and we are getting a vest in the next week or so. We've been doing manual CPT since she was 5 months. She has been doing albuterol (xopenex now) inhaler since she was around 7 or 8 months, but we only do it when she has a cold and/or cough. She's also been on Pulmozyme...
  11. C

    Dr. Office Ettiquette

    I have signs on my daughter's stroller that say "Please Wash Your Hands Before You Touch Mine" I actually got them from a synagis rep. You could ask your pediatrician if they have any of the signs from the synagis rep or just make one. I think that it is totally appropriate to say, "I would...
  12. C

    Dr. Office Ettiquette

    I have signs on my daughter's stroller that say "Please Wash Your Hands Before You Touch Mine" I actually got them from a synagis rep. You could ask your pediatrician if they have any of the signs from the synagis rep or just make one. I think that it is totally appropriate to say, "I would...
  13. C

    Dr. Office Ettiquette

    I have signs on my daughter's stroller that say "Please Wash Your Hands Before You Touch Mine" I actually got them from a synagis rep. You could ask your pediatrician if they have any of the signs from the synagis rep or just make one. I think that it is totally appropriate to say, "I would...
  14. C

    Dr. Office Ettiquette

    I have signs on my daughter's stroller that say "Please Wash Your Hands Before You Touch Mine" I actually got them from a synagis rep. You could ask your pediatrician if they have any of the signs from the synagis rep or just make one. I think that it is totally appropriate to say, "I would...
  15. C

    Dr. Office Ettiquette

    I have signs on my daughter's stroller that say "Please Wash Your Hands Before You Touch Mine" <br /> <br />I actually got them from a synagis rep. You could ask your pediatrician if they have any of the signs from the synagis rep or just make one. I think that it is totally appropriate to say...
  16. C

    Welcome Ambry Genetics

    My husband and I have been looking all over the internet trying to find a list of CFTR gene mutation classes. alas, we gave up because we couldn't find one with our daughter's mutation on it. She has a DF508 which we know is a class 2, but her other mutation is 1898+1G>A and we can't find it on...
  17. C

    Time for a vest...

    So, at clinic today they measured Cammie and said that she is big enough for a vest. They gave us some information on all three and told us to choose which one is best. I was just wondering if anyone had some input on which one worked best/worst, easiest/hardest, etc. My husband looked them all...
  18. C

    Time for a vest...

    So, at clinic today they measured Cammie and said that she is big enough for a vest. They gave us some information on all three and told us to choose which one is best. I was just wondering if anyone had some input on which one worked best/worst, easiest/hardest, etc. My husband looked them all...
  19. C

    Time for a vest...

    So, at clinic today they measured Cammie and said that she is big enough for a vest. They gave us some information on all three and told us to choose which one is best. I was just wondering if anyone had some input on which one worked best/worst, easiest/hardest, etc. My husband looked them all...
  20. C

    Time for a vest...

    So, at clinic today they measured Cammie and said that she is big enough for a vest. They gave us some information on all three and told us to choose which one is best. I was just wondering if anyone had some input on which one worked best/worst, easiest/hardest, etc. My husband looked them all...
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