Cystic Fibrosis Forum (EXP)

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  1. A

    Tobi/cayston

    I use them both evn though i'm convinced cayston does not work for me :-)
  2. A

    backed up!

    Thanks everyone, I will head to the pharmacy tomorrow for some mag citrate and some Haritaki. Everyone was really helpful I really appreciate it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. A

    backed up!

    Thanks everyone, I will head to the pharmacy tomorrow for some mag citrate and some Haritaki. Everyone was really helpful I really appreciate it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. A

    backed up!

    I have been on a twice a day myralax diet with go lightly every 3 weeks, but it doesn't seem to be ridding me of everything that has backed up. The Dr. says it is med induced, but has not been too helpful on having any other answers. Just wondering if anyone else has or is in the same situation...
  5. A

    backed up!

    I have been on a twice a day myralax diet with go lightly every 3 weeks, but it doesn't seem to be ridding me of everything that has backed up. The Dr. says it is med induced, but has not been too helpful on having any other answers. Just wondering if anyone else has or is in the same situation...
  6. A

    How do you travel with tobi & pulmozyme?

    When I travel with them I just don't refrigerate them, they can both be left out for up to 28 days as Incomudrox has previously stated. :@)
  7. A

    How do you travel with tobi & pulmozyme?

    When I travel with them I just don't refrigerate them, they can both be left out for up to 28 days as Incomudrox has previously stated. :@)
  8. A

    eradicating MRSA in cf...This is interesting...show your doc

    That's awesome, I wonder when the U.S. will start doing it?
  9. A

    eradicating MRSA in cf...This is interesting...show your doc

    That's awesome, I wonder when the U.S. will start doing it?
  10. A

    Generic Hyper-Sal

    I have always been receiving generic through my pharmacy, but I have to 60.00 for it because my insurance doesn't cover it. I was told that no insurance covered it, anyway it seems to work just fine for me.
  11. A

    Just for fun but CF related - Real things doctors have said to me in the hospital

    I went to the ER once with a pseudomonas infection & the Dr. told me I may be hung over and I should go home & sleep. When I told him I had CF he responded with "How long have you had that?" I had to stop myself from responding, only a day or two! lol
  12. A

    Just for fun but CF related - Real things doctors have said to me in the hospital

    I went to the ER once with a pseudomonas infection & the Dr. told me I may be hung over and I should go home & sleep. When I told him I had CF he responded with "How long have you had that?" I had to stop myself from responding, only a day or two! lol
  13. A

    Interviews for book about chronic disease

    I wouldn't mind being interviewed, I am 36 & awaiting a tx while we speak. I was diagnosed at 22 & never had it affect my life till recently. Now it's affecting it in the biggest way.
  14. A

    Interviews for book about chronic disease

    I wouldn't mind being interviewed, I am 36 & awaiting a tx while we speak. I was diagnosed at 22 & never had it affect my life till recently. Now it's affecting it in the biggest way.
  15. A

    Where does hyper tonic fit in?

    I was just perscribed hyper tonic saline, but no one told me where in my order of inhaled therapies I should place it. I do Albuteral, pulmozyme, cayston & symbacort. Any help would be greatly appreciated, thanks.<img title="Smile"...
  16. A

    Where does hyper tonic fit in?

    I was just perscribed hyper tonic saline, but no one told me where in my order of inhaled therapies I should place it. I do Albuteral, pulmozyme, cayston & symbacort. Any help would be greatly appreciated, thanks.<img title="Smile"...
  17. A

    doc and I disagree

    Albuterol=5-10 mins Pulmozyme=5-10 mins TOBI= 20 mins Cayston =90 seconds I use a Devilbiss Pulmoaide that is about 6 months old.
  18. A

    doc and I disagree

    Albuterol=5-10 mins Pulmozyme=5-10 mins TOBI= 20 mins Cayston =90 seconds I use a Devilbiss Pulmoaide that is about 6 months old.
  19. A

    prednisone pre-transplant

    I am pre TX and have been on prednisone for over a month and I have to say i hate it! I feel puffy and shaky all the time. The thought of being on it permanently after TX scares me. My blood sugars are out of control and I constantly have these horrible headaches. I had a PV1 of 18 when I...
  20. A

    prednisone pre-transplant

    I am pre TX and have been on prednisone for over a month and I have to say i hate it! I feel puffy and shaky all the time. The thought of being on it permanently after TX scares me. My blood sugars are out of control and I constantly have these horrible headaches. I had a PV1 of 18 when I...
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