Cystic Fibrosis Forum (EXP)

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  1. L

    Starting the process for transplant... get listed or wait for Kalydeco/VX-809?

    LindseyRose: a few months ago I was in the exact same situation as you, besides I work part time. I went for all of the testing to of the lung transplant evaluation, and while I was there, I more or less had an epiphany... I came in contact with another individual who ha CF and he was much worse...
  2. L

    prednisone pre-transplant

    I am actually beginning the process of trying to get a lung transplant. My FEV1 is 15 and I have found that higher doses of prednisone help me a lot. My doctor put me on 50 mg for 5 days, and while I was on it, I actually felt like I didn't have a lung disease. It was that much better. My...
  3. L

    prednisone pre-transplant

    I am actually beginning the process of trying to get a lung transplant. My FEV1 is 15 and I have found that higher doses of prednisone help me a lot. My doctor put me on 50 mg for 5 days, and while I was on it, I actually felt like I didn't have a lung disease. It was that much better. My...
  4. L

    prednisone pre-transplant

    I am actually beginning the process of trying to get a lung transplant. My FEV1 is 15 and I have found that higher doses of prednisone help me a lot. My doctor put me on 50 mg for 5 days, and while I was on it, I actually felt like I didn't have a lung disease. It was that much better. My...
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