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as you prob already know haydn had a appointment today well i just found out the full gene screening has been done without me knowing about it and came back he does not have cystic fibrosis but the lady from the butterfly trust said something about the gene screening only testing for the known...

since wee gy had his tube removed his nose has stopped streaming not running at all now .when he is sleeping however i have noticed it is like he is breathing thru a straw. sometimes he looses his breath catches it agin just to c if u had any suggestions

i spoke to a cystic fibrosis support place here in edinburgh and the woman said if i get no where whith my doctor to call her back and she will get in touch with the cystic fibrosis nurses here to see if she can get haydn treatment for his symptoms till he gets a diagnosis any ideas

as from my recent ost you know my sons symptoms i had him at the doctoers today where i got his full sweat test results they are as follows SWEAT CONDUCTIVITY 34 SWEAT CHLORIDE 12 SWEAT VOLUME 19 WHAT DO YOU GUYS THINK

can someone please give me some info on cf so i can fight my case for a full gene screening what kinds of cystic fibrosis are there

spoke to the old consultant who said jis sweat test came back normal and his chloride was 12 do i stii ask for a full screening

well the wee guy had his sweat test 2day and i called at 4 to see if anything was thru the lab person said his test results are away to be verified but i can not tell you the result you will have to call in the morning and talk to his consultant what does this mean

well guys tomorrow is the day haydn gets his sweat test im dreading it dont know why hope all goes well as he has had that many docs and nurses about hm lately even taking him to the clinic to get weighed is turning out to be a night mare x cheers guys

okay i need help haydn has done three oops today and this is not like him at all they stink any ideas it seems to be after maels or milk

haydn has the sweat test on monday and as many of you have said he has the symptoms of cf but he had a appointment with a consultant yesterday who said there is no way he has cf can anyone help i really do not know what to do x

can you please tell me about the salt thing where if u kiss u taste salt i kissed my little ones head and my lips tingle x

my sons symptoms sre 1- failure to thrive he was admitted to hospital on the 30th of july for this 2-poor apitite as he is very sick has been since birth he is only on the first centile line on his plotting chart which is below the warning stage 3- caugh which he has had since birth really...

my sons symptoms sre 1- failure to thrive he was admitted to hospital on the 30th of july for this 2-poor apitite as he is very sick has been since birth he is only on the first centile line on his plotting chart which is below the warning stage 3- caugh which he has had since birth really...

my little boy is having a sweat test can you please list the symptoms for me so i can compare ps im new so hello every one