Cystic Fibrosis Forum (EXP)

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  1. L

    Piece for a friends report

    My friend recently wrote a paper on cf for her premed class. She asked me to write a "bio" of sorts about dealing with disease. Just thought I'd share it with you all, since you'll know where I'm coming from =) ----- Every morning I awake wishing I hadn't. With each breath I take, a part of...
  2. L

    meeting new dr this month in nyc at pres columbia

    so its been a while but i finally got my insurance and everything straightened out so i could make an appt with a cf center out here. ended up making one with dr emily dimango (sp) at columbia... im certain im going to need ivs asap. my pfts are probably in the 30s (usually high 40s at baseline)...
  3. L

    Frustrated with "adult" transitions?

    Just wondering if anyone else is as pissed off as I am about the cff "mandating" that clinics branch off and have separate adult clinics... i know at some places this isn't a new idea, but when youve had the same dr for 18 years, why the hell would you want to switch to a new one who has only a...
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