Cystic Fibrosis Forum (EXP)

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  1. A

    Welcome Ambry Genetics

    Steven (Ambry) Steve, COuld u tell me about 1898 +1G >A, what class is it and does it involve a nonsense, splicing, or deletion.. thanks Lori
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    I just found out my son's mutation!

    Hi Amber, I don't know anything about the mutation, but I have talked to Ambrey on the phone, and they put a genetic counselor on the phone who told me about my son's mutation, how many people they have tested w/ it and their symptoms. I also posted a couple of weeks ago about an addittional...
  3. A

    I just found out my son's mutation!

    Hi Amber, I don't know anything about the mutation, but I have talked to Ambrey on the phone, and they put a genetic counselor on the phone who told me about my son's mutation, how many people they have tested w/ it and their symptoms. I also posted a couple of weeks ago about an addittional...
  4. A

    I just found out my son's mutation!

    Hi Amber, I don't know anything about the mutation, but I have talked to Ambrey on the phone, and they put a genetic counselor on the phone who told me about my son's mutation, how many people they have tested w/ it and their symptoms. I also posted a couple of weeks ago about an addittional...
  5. A

    help alleviate my irrational fears!!

    have u had a swet test done?  it is a simple painless test, ask your doc bout it w/ the family history
  6. A

    help alleviate my irrational fears!!

    have u had a swet test done?  it is a simple painless test, ask your doc bout it w/ the family history
  7. A

    help alleviate my irrational fears!!

    have u had a swet test done?  it is a simple painless test, ask your doc bout it w/ the family history
  8. A

    Glutathione

    This site is a glut forum like this one and then there is a section up top where people have posted their stories of using GSH.  My son used it a couple of years ago for about three months, oral only.  Didn't see any benefits but didn't have any negatives either.  I am thinking about starting...
  9. A

    Glutathione

    This site is a glut forum like this one and then there is a section up top where people have posted their stories of using GSH.  My son used it a couple of years ago for about three months, oral only.  Didn't see any benefits but didn't have any negatives either.  I am thinking about starting...
  10. A

    Glutathione

    This site is a glut forum like this one and then there is a section up top where people have posted their stories of using GSH.  My son used it a couple of years ago for about three months, oral only.  Didn't see any benefits but didn't have any negatives either.  I am thinking about starting...
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    cholesterol

    Craig,<br> I have never seen #s like that to represent cholesterol.  Usually it's a 2 or 3 didgit value.  And there are diff #s for trigs, HDL, LDL, etc....<br> I once asked about high cholesterol and the dr told me CFers didn't need to worry about it, and if it was ever a problem, then there...
  12. A

    cholesterol

    Craig,<br> I have never seen #s like that to represent cholesterol.  Usually it's a 2 or 3 didgit value.  And there are diff #s for trigs, HDL, LDL, etc....<br> I once asked about high cholesterol and the dr told me CFers didn't need to worry about it, and if it was ever a problem, then there...
  13. A

    cholesterol

    Craig,<br> I have never seen #s like that to represent cholesterol.  Usually it's a 2 or 3 didgit value.  And there are diff #s for trigs, HDL, LDL, etc....<br> I once asked about high cholesterol and the dr told me CFers didn't need to worry about it, and if it was ever a problem, then there...
  14. A

    To speak of CF or not...

    x
  15. A

    To speak of CF or not...

    x
  16. A

    To speak of CF or not...

    x
  17. A

    Changing Enzymes

    Claudette,<br> Golytly is medication that cleans out your bowels.  They give it to people that are having colonoscopys.  It is powder formula and u can mix it with fluids like apple juice or IVs.  It was used in my son, when he was having stomach pains and even had intussuseption.  At one time...
  18. A

    Changing Enzymes

    Claudette,<br> Golytly is medication that cleans out your bowels.  They give it to people that are having colonoscopys.  It is powder formula and u can mix it with fluids like apple juice or IVs.  It was used in my son, when he was having stomach pains and even had intussuseption.  At one time...
  19. A

    Changing Enzymes

    Claudette,<br> Golytly is medication that cleans out your bowels.  They give it to people that are having colonoscopys.  It is powder formula and u can mix it with fluids like apple juice or IVs.  It was used in my son, when he was having stomach pains and even had intussuseption.  At one time...
  20. A

    x

    Yes it
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