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My daughter (17 months) is on:
Enzymes every meal (Switched to Pancreocarb as seems to be more effective for her then Creon)
Prevacid (half tab daily)
Albutorol via Neb (2 treatments daily)
Vest (20 minutes twice a day)
Aquadek (1.25 ml a day)
Actually thats it right now. She had previously...
My daughter (17 months) is on:
Enzymes every meal (Switched to Pancreocarb as seems to be more effective for her then Creon)
Prevacid (half tab daily)
Albutorol via Neb (2 treatments daily)
Vest (20 minutes twice a day)
Aquadek (1.25 ml a day)
Actually thats it right now. She had previously...
My daughter (17 months) is on:
Enzymes every meal (Switched to Pancreocarb as seems to be more effective for her then Creon)
Prevacid (half tab daily)
Albutorol via Neb (2 treatments daily)
Vest (20 minutes twice a day)
Aquadek (1.25 ml a day)
Actually thats it right now. She had previously...
My daughter (17 months) is on:
Enzymes every meal (Switched to Pancreocarb as seems to be more effective for her then Creon)
Prevacid (half tab daily)
Albutorol via Neb (2 treatments daily)
Vest (20 minutes twice a day)
Aquadek (1.25 ml a day)
Actually thats it right now. She had previously...
My daughter (17 months) is on:
<br />
<br />Enzymes every meal (Switched to Pancreocarb as seems to be more effective for her then Creon)
<br />Prevacid (half tab daily)
<br />Albutorol via Neb (2 treatments daily)
<br />Vest (20 minutes twice a day)
<br />Aquadek (1.25 ml a day)
<br />
<br...
My wife and I are up to $5800!
Excited for our first walk on May 20.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=4760&idUser=172030
">http://www.cff.org/great_strid...id=4760&idUser=172030
</a>
My wife and I are up to $5800!
Excited for our first walk on May 20.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=4760&idUser=172030
">http://www.cff.org/great_strid...id=4760&idUser=172030
</a>
My wife and I are up to $5800!
Excited for our first walk on May 20.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=4760&idUser=172030
">http://www.cff.org/great_strid...id=4760&idUser=172030
</a>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Salena</b></i>
Hi Mike,
My daughter also was born w/ the bowel blockage and had to have a colostomy for the first five months, she also has a doulbe deltaF508 mutuation. She is doing very good mild respiratory symptoms, has the...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Salena</b></i>
Hi Mike,
My daughter also was born w/ the bowel blockage and had to have a colostomy for the first five months, she also has a doulbe deltaF508 mutuation. She is doing very good mild respiratory symptoms, has the...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Salena</b></i>
Hi Mike,
My daughter also was born w/ the bowel blockage and had to have a colostomy for the first five months, she also has a doulbe deltaF508 mutuation. She is doing very good mild respiratory symptoms, has the...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
I was born much the same as your Abigail. Meconium ileus, surgery to remove it, CF dx (diagnosis).
One quick note I like to make because it seems like news to most people... having no family history (as...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
I was born much the same as your Abigail. Meconium ileus, surgery to remove it, CF dx (diagnosis).
One quick note I like to make because it seems like news to most people... having no family history (as...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
I was born much the same as your Abigail. Meconium ileus, surgery to remove it, CF dx (diagnosis).
One quick note I like to make because it seems like news to most people... having no family history (as...
Hi Steven,
I was afraid you were going to say that about the 182delT mutation, as I noted what you said about deletion mutations earlier in the thread. I can't thank you enough for taking the time to share what you know.
We are being referred into Children's in Los Angeles (we are in Encino)...
Dear Steven,
I have just read through this thread and wanted to say thank you to you for all the wonderful information.
My wife and I have a daughter who was recently diagnosed with CF after being born with a meconium illeous issue at birth.
We just learned through genetic testing that she...
I just want to say thanks for the responses to my original questions. I really appreciate the information conveyed. Happily for my wife and I, we brought home little Abigail from the hospital on Sunday evening after 30 days in the NICU. Having her home, makes facing the CF diagnoses much...
I just want to say thanks for the responses to my original questions. I really appreciate the information conveyed. Happily for my wife and I, we brought home little Abigail from the hospital on Sunday evening after 30 days in the NICU. Having her home, makes facing the CF diagnoses much...
I just want to say thanks for the responses to my original questions. I really appreciate the information conveyed. Happily for my wife and I, we brought home little Abigail from the hospital on Sunday evening after 30 days in the NICU. Having her home, makes facing the CF diagnoses much...
Hello,
My wife and I just had our first child and our daughter had Meconium Illeous at birth that required surgery. We just got the final genetic testing back yesterday that confirms a diagnosis of CF as she has one copy of the delta f508 mutation (which appears to be the most common and one...
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