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You need to be very careful how you explain CF to a yough child. You need to stress the importance of not skipping medication and treatments and explain that the consequences of this. At the same time you don't want to scare them. Alway be very positive (even if you don't feel that way)...

You need to be very careful how you explain CF to a yough child. You need to stress the importance of not skipping medication and treatments and explain that the consequences of this. At the same time you don't want to scare them. Alway be very positive (even if you don't feel that way)...

Monique feels like that sometimes but not because of the CF, but because she has a learning disability and doesn't have a lot of friends and often feel left out or frustrated because she would like to be able to study and so on. When she says she wishes she wasn't around I always try to...

Monique feels like that sometimes but not because of the CF, but because she has a learning disability and doesn't have a lot of friends and often feel left out or frustrated because she would like to be able to study and so on. When she says she wishes she wasn't around I always try to...

where does one get the Acapella? Is the an example on the web? thanks

where does one get the Acapella? Is the an example on the web? thanks

Sean, wether it's bacon or bolonga it might not cure the CF but you'll have no butt problems for sure - the frozen goodies would see to that! Seriosly though I think there's nothing wrong with being informed. Where you might be really worried about a new symptom at least it helps to find out...

Sean, wether it's bacon or bolonga it might not cure the CF but you'll have no butt problems for sure - the frozen goodies would see to that! Seriosly though I think there's nothing wrong with being informed. Where you might be really worried about a new symptom at least it helps to find out...

The reason for the extra fat etc is because CF'rs use a lot of energy especially when they're sick. If their weight is good they get over infections easier and they have more resistance. If weigh gain isn't an issue with your child it's probably because you're already doing a great job of...

The reason for the extra fat etc is because CF'rs use a lot of energy especially when they're sick. If their weight is good they get over infections easier and they have more resistance. If weigh gain isn't an issue with your child it's probably because you're already doing a great job of...

Hi Caitlin I'm sorry you're feeling so bad. Without you Mom to turn to, and the boyfriend problem things really seem to be bad at the moment. I sense from what you are saying that your instinct is actually telling you that you need to call the doctor again. Please do! If the antibiotic isnt...

Hi Caitlin I'm sorry you're feeling so bad. Without you Mom to turn to, and the boyfriend problem things really seem to be bad at the moment. I sense from what you are saying that your instinct is actually telling you that you need to call the doctor again. Please do! If the antibiotic isnt...

Monique cultured HIB and Staph together until she was about 14 then she was given Vancomycin IV to get rid of the Staph and it seemed to get rid of everything. Since then she has only cultured PA once and Staph a few times.

Monique cultured HIB and Staph together until she was about 14 then she was given Vancomycin IV to get rid of the Staph and it seemed to get rid of everything. Since then she has only cultured PA once and Staph a few times.

Welcome Donovan, great to meet you.

Welcome Donovan, great to meet you.

There was a CF guy (I think he was in his twenties) who completed the Comrade's marathon last year. I don't know him but saw it on the TV coverage. That's a +-75km race up and down some really steep hills!

There was a CF guy (I think he was in his twenties) who completed the Comrade's marathon last year. I don't know him but saw it on the TV coverage. That's a +-75km race up and down some really steep hills!

Chris I've heard that before. The doctors here say that the Vest is not necessary because hand clapping is better (and cheaper). Anyhow I'm trying to raise the funds for my African friend who's problem is that she leaves for work at 5.00 am and get's back home at 6.00pm and has little time...

Chris I've heard that before. The doctors here say that the Vest is not necessary because hand clapping is better (and cheaper). Anyhow I'm trying to raise the funds for my African friend who's problem is that she leaves for work at 5.00 am and get's back home at 6.00pm and has little time...