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I just signed up for a team. However, I'm not sure how it works...especially the first year. Do I just ask friends to walk together? Do I ask those same people to give money or are they in charge of getting money from other people? Am I supposed to give money? How much? I'm not sure I...

My son has the mutation 621+1G->T and Delta f508. I have been told that that genotypes do not indicate phenotypes. However, I have also been told this mutation has more GI issues. Nonetheless, I'd love to know about those who have this mutation. I have actually started a blog to keep in...

My husband and I have decided not to have more biological children due to the risk of having another CF child. However, we are considering sperm or egg donation. We have had two successful pregnancies and have no problem having more children on our own. However, we do not believe we can...

I'd like to send home a letter to the parents of my child's nursery at church explaining to parents the importance of not bringing sick children to church. Does anybody have a letter regarding this issue that they may have sent at a daycare or other nursery situation? Thanks!

My son was born with meconium peritinis/meconium ileus. He's 8 weeks old and already had two major hospitalizations. Has anybody tried to apply for Social Security benefits for their child with CF? Our income may be prohibitive but I'm still going to apply. Has anyone had success? Any...