Cystic Fibrosis Forum (EXP)

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    SSI questions

    Does anybody else or their children with cf get SSI or have they applied for it or do they even qualify?????
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    sweat test

    We found out that our baby has cf through newborn screening when he was 9 days old, but we just had his sweat test done last week (he is now 5 weeks old). The people at Children's told me that normal (no cf) is 39 or 40. Connor's numbers were 113 and 109. So thats very high. Does the higher the...
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    Thank You

    Thank you thank you thank you all for being so helpful to me, it got me through the longest weekend of my life. We went to our very first appointment at Children's Hospital today. I feel a lot better knowing more info and talking to the people that will help us keep our baby as healthy and as...
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    Hello

    Hello, I am new to the site, and I just found out yesterday that my 10 day old baby has cf. And I guess that I just have lots of questions. It seems to me that he's pretty sick, but I don't even want to say that. He isn't eating at all as much as he should, and when he does eat he throws up...
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