Cystic Fibrosis Forum (EXP)

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  1. C

    Pulmozyme "funny taste"

    My son who has been using pulmozyme for approx 4 yrs now just started having a funny taste in his mouth as he is finishing his pulmozyme. I looked through the package insert with the med and did not find anything like that. I have a call into the doc, but have not heard anything yet. I was...
  2. C

    I am new here

    I am new to this forum and some what new to CF since my son has been diagnosed 2 years ago. He was sent through all the testing that goes along with it and had a genetic test was done. We were informed he doesn't have the I think "80 common genes" for CF. He has the respiratory problems but not...
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