Cystic Fibrosis Forum (EXP)

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  1. S

    What do you do when it's almost over?

    When I realized, or began to suspect, I had about a year left, and I wasn't ready to die yet, I got very agressive working on the transplant angle. Boy was I glad I did, because I didn't realize how time and energy consuming it was. In other words, I was glad I started that while I still had...
  2. S

    What do you do when it's almost over?

    When I realized, or began to suspect, I had about a year left, and I wasn't ready to die yet, I got very agressive working on the transplant angle. Boy was I glad I did, because I didn't realize how time and energy consuming it was. In other words, I was glad I started that while I still had...
  3. S

    What do you do when it's almost over?

    When I realized, or began to suspect, I had about a year left, and I wasn't ready to die yet, I got very agressive working on the transplant angle. Boy was I glad I did, because I didn't realize how time and energy consuming it was. In other words, I was glad I started that while I still had...
  4. S

    What do you do when it's almost over?

    When I realized, or began to suspect, I had about a year left, and I wasn't ready to die yet, I got very agressive working on the transplant angle. Boy was I glad I did, because I didn't realize how time and energy consuming it was. In other words, I was glad I started that while I still had...
  5. S

    What do you do when it's almost over?

    When I realized, or began to suspect, I had about a year left, and I wasn't ready to die yet, I got very agressive working on the transplant angle. Boy was I glad I did, because I didn't realize how time and energy consuming it was. In other words, I was glad I started that while I still had...
  6. S

    Ports in women...

    Haven't done this in a while, hope this posts normally. I just wanted to add that I loved my port, after thinking I would hate it. I, too, was having more trouble with PICCs, and the PICC placement was causing me more anxiety than I had realized (until it went away after I got the port). They...
  7. S

    Ports in women...

    Haven't done this in a while, hope this posts normally. I just wanted to add that I loved my port, after thinking I would hate it. I, too, was having more trouble with PICCs, and the PICC placement was causing me more anxiety than I had realized (until it went away after I got the port). They...
  8. S

    Ports in women...

    Haven't done this in a while, hope this posts normally. I just wanted to add that I loved my port, after thinking I would hate it. I, too, was having more trouble with PICCs, and the PICC placement was causing me more anxiety than I had realized (until it went away after I got the port). They...
  9. S

    Ports in women...

    Haven't done this in a while, hope this posts normally. I just wanted to add that I loved my port, after thinking I would hate it. I, too, was having more trouble with PICCs, and the PICC placement was causing me more anxiety than I had realized (until it went away after I got the port). They...
  10. S

    Ports in women...

    Haven't done this in a while, hope this posts normally. I just wanted to add that I loved my port, after thinking I would hate it. I, too, was having more trouble with PICCs, and the PICC placement was causing me more anxiety than I had realized (until it went away after I got the port). They...
  11. S

    Insurance limits on lung tx

    I have e-mailed Juile and she is checking with her contact in the SSA. I'll let you know what she finds out. There are probably others here in the same boat!
  12. S

    Insurance limits on lung tx

    I have e-mailed Juile and she is checking with her contact in the SSA. I'll let you know what she finds out. There are probably others here in the same boat!
  13. S

    Insurance limits on lung tx

    I have e-mailed Juile and she is checking with her contact in the SSA. I'll let you know what she finds out. There are probably others here in the same boat!
  14. S

    Insurance limits on lung tx

    I have e-mailed Juile and she is checking with her contact in the SSA. I'll let you know what she finds out. There are probably others here in the same boat!
  15. S

    Insurance limits on lung tx

    I have e-mailed Juile and she is checking with her contact in the SSA. I'll let you know what she finds out. There are probably others here in the same boat!
  16. S

    Insurance limits on lung tx

    Thanks, Skye! I had heard about the wait time for Medicare after disability, but I didn't know you could get back credit with an eligible FEV1. I will definitely look into that.
  17. S

    Insurance limits on lung tx

    Thanks, Skye! I had heard about the wait time for Medicare after disability, but I didn't know you could get back credit with an eligible FEV1. I will definitely look into that.
  18. S

    Insurance limits on lung tx

    Thanks, Skye! I had heard about the wait time for Medicare after disability, but I didn't know you could get back credit with an eligible FEV1. I will definitely look into that.
  19. S

    Insurance limits on lung tx

    Thanks, Skye! I had heard about the wait time for Medicare after disability, but I didn't know you could get back credit with an eligible FEV1. I will definitely look into that.
  20. S

    Insurance limits on lung tx

    Thanks, Skye! I had heard about the wait time for Medicare after disability, but I didn't know you could get back credit with an eligible FEV1. I will definitely look into that.
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