Cystic Fibrosis Forum (EXP)

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  1. H

    Atypical CF

    My six year old daughter was dx about 2 months ago w/CF and last week my 7 month old was dx w/ Atypical CF. They both have delts 508, 5T, 7T and 9T variants, I believe. The six year old is taking all the usual meds 3x a day. The 7th month old has only had 1 resp. infection and is not on any...
  2. H

    Need help with a 504 plan

    Hi. I just heard from my daughter's school dist. that they do not think that she needs a 504, I disagree! The dist. will grant and put all of my reasonable request in writing on the school "health plan" but will not grant a 504 at this time. The director of Special education feels that if she...
  3. H

    CF & Migrains

    Has anyone experienced migrains as a side effect to CF meds? If so any quick treatments?
  4. H

    New to CF

    Just found out that my six year old daughter has CF. For the fast six years she has been treated for asthma. At birth she had a collapsed lung, RSV virus along with multiple trips to the ER w/ Resp. illnesses. It wasn't until the birth on my youngest that a positive CF gene was dectected...
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