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<span style="background-color: #ffffff; font-family: verdana,geneva; color: #333399; font-size: small;">As I was driving to work this week, I noticed that I think about CF a lot while I'm by myself. Whether it be thinking about my CF friends who have been sick, how I'm feeling that day, how I...
Erik Erikson, social scientist, defined "middle age" as the period between ages 40-65, although the US census has often linked it to the ages of 35-50. Therefore, I feel that I am now at the point where I'm transitioning from early adulthood into middle adulthood. My thoughts on this have been...
I finally got some solid evidence of hypoglycemia in CF. I found that one of my old dieticians had some great articles to share with me. So I thought I'd pass them along to you all since many of you deal with the same issues with hypoglycemia. If anyone wants additional information on...
I went to my clinic appointment today. I was quite pleased with my PFTs since they were 1% higher than in December. But for some reason, my doctor thinks I'm "losing an edge" on my numbers. He basically gave me two options - either start HTS every day or alternate between HTS and a double...
Hi everyone,
So the other day I was driving for work at about 10:30am and started getting really weak, hungry, and shaky. I knew my blood sugar was plummeting, so I pulled off to a fast-food restaurant to grab some orange juice and food. It just didn't feel like it was coming back up fast...
Wow, I'm just about 2 weeks into Cayston and I feel AMAZING! I noticed last night that I have never felt this good...ever. I am not short of breath going up stairs. My cough is almost nonexistent. It's awesome! Now let's hope it stays that way for awhile <img...
Hi all,
I was at work today and we had a lady filling in for our regular lab technician. She was coughing pretty bad and had clubbed fingers, so I instantly thought she had CF. Sure enough, my fellow coworkers were curious and concerned about her cough and she told us that she had CF.
At...
Hi all,
I started with exacerbation-like symptoms last week, increased cough, extra sputum, crackly, and harder to breathe. I knew right away that I need some antibiotics, so I got started on Colistin.
Initially I thought I was feeling better, but now my symptoms are much worse. But oddly...
Hi all,
I have had an increased cough now for a few weeks, so my doctor started me on Colistin (which is what I used a few years ago for an exacerbation). However, I don't know if he prescribed the dose for my eFlow or not. He told me to mix 3 mL of sterile water with the Colisin vial and...
Hi everyone,
Does anyone have problems with pulled muscles in the chest? I have had an ongoing problem lately with a muscle in the front of my chest that I keep constantly hurting. I was up for hours last night trying to get comfortable. I seem to pull the muscle at night, and I'm almost...
Hi everyone,
Before I start, let me backtrack a little. In my teens and early twenties, my FEV1 hovered around 70-75%. I could count on it dipping down into the 60's when I wasn't feeling well. I never ever thought I'd see a day when I would hit 80%. But then, by some miracle about 5 years...
Here is an article that came out today:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.nowpublic.com/health/tylenol-recall-2009-list-infant-and-childrens-tylenol-recall">Risk of B. cepacia in Infant and Children's Tylenol</a>
Here are the lot #'s that are being recalled:
<a...
Here is an article that came out today:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.nowpublic.com/health/tylenol-recall-2009-list-infant-and-childrens-tylenol-recall">Risk of B. cepacia in Infant and Children's Tylenol</a>
Here are the lot #'s that are being recalled:
<a...
Here is an article that came out today:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.nowpublic.com/health/tylenol-recall-2009-list-infant-and-childrens-tylenol-recall">Risk of B. cepacia in Infant and Children's Tylenol</a>
Here are the lot #'s that are being recalled:
<a...
Hi everyone,
Has anyone every tried vesting upside-down? My spouse (who is an RT) recommended trying that to see if it helped. The only problem I can think of with that is making sure that the vest is not touching anything because it seems to not work as well when I lean against something...
I have one spot on my face where salt crystals build up every single day (right by my eyebrow). I highly doubt I sweat there. But I have to check my face every day and wipe off the crystals. Does anyone else have problems with salt crystals appearing like that without even sweating?
Hi everyone,
I know many/most people with CF have a problem gaining weight, but there has to be other CFers in the same boat as me.
I am pancreatic insufficient and I always had a hard time gaining weight when I was a kid/teen, but now I seem to have a problem losing weight. Before I got...
Hi everyone,
Well, three months ago I gave birth to my sweet little boy. It has really been quite a rollercoaster ride to go from one baby to two babies.
Gavin was a colicky baby and has reflux pretty bad. We have an appointment with the peds gastro in a couple weeks, but he has improved so...
Hi there,
I'm getting my vest! It should be here tomorrow or Friday and I'm so excited. And my insurance covered it all!!! (Whew)
I tried the vest at my last clinic appointment. I hadn't used it since I was at CF camp back about 15 years ago. Since I am allergic to all the good oral...
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