Cystic Fibrosis Forum (EXP)

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  1. R

    How much do you THINK about CF?

    <span style="background-color: #ffffff; font-family: verdana,geneva; color: #333399; font-size: small;">As I was driving to work this week, I noticed that I think about CF a lot while I'm by myself.  Whether it be thinking about my CF friends who have been sick, how I'm feeling that day, how I...
  2. R

    Transitioning to Middle Adulthood

    Erik Erikson, social scientist, defined "middle age" as the period between ages 40-65, although the US census has often linked it to the ages of 35-50. Therefore, I feel that I am now at the point where I'm transitioning from early adulthood into middle adulthood. My thoughts on this have been...
  3. R

    neb for HTS?

    Hi everyone, I'm just starting HTS for the first time and I forgot to ask which nebulizer cup to use it in. Do you use it with a Pari LC? Thanks!
  4. R

    hypoglycemia in CF

    I finally got some solid evidence of hypoglycemia in CF. I found that one of my old dieticians had some great articles to share with me. So I thought I'd pass them along to you all since many of you deal with the same issues with hypoglycemia. If anyone wants additional information on...
  5. R

    frustrating clinic appointment

    I went to my clinic appointment today. I was quite pleased with my PFTs since they were 1% higher than in December. But for some reason, my doctor thinks I'm "losing an edge" on my numbers. He basically gave me two options - either start HTS every day or alternate between HTS and a double...
  6. R

    Low blood sugar - late morning

    Hi everyone, So the other day I was driving for work at about 10:30am and started getting really weak, hungry, and shaky. I knew my blood sugar was plummeting, so I pulled off to a fast-food restaurant to grab some orange juice and food. It just didn't feel like it was coming back up fast...
  7. R

    I heart Cayston!

    Wow, I'm just about 2 weeks into Cayston and I feel AMAZING! I noticed last night that I have never felt this good...ever. I am not short of breath going up stairs. My cough is almost nonexistent. It's awesome! Now let's hope it stays that way for awhile <img...
  8. R

    kinda cool

    Hi all, I was at work today and we had a lady filling in for our regular lab technician. She was coughing pretty bad and had clubbed fingers, so I instantly thought she had CF. Sure enough, my fellow coworkers were curious and concerned about her cough and she told us that she had CF. At...
  9. R

    UPDATE* confused

    Hi all, I started with exacerbation-like symptoms last week, increased cough, extra sputum, crackly, and harder to breathe. I knew right away that I need some antibiotics, so I got started on Colistin. Initially I thought I was feeling better, but now my symptoms are much worse. But oddly...
  10. R

    eFlow & Colistin?

    Hi all, I have had an increased cough now for a few weeks, so my doctor started me on Colistin (which is what I used a few years ago for an exacerbation). However, I don't know if he prescribed the dose for my eFlow or not. He told me to mix 3 mL of sterile water with the Colisin vial and...
  11. R

    pulled muscles in chest

    Hi everyone, Does anyone have problems with pulled muscles in the chest? I have had an ongoing problem lately with a muscle in the front of my chest that I keep constantly hurting. I was up for hours last night trying to get comfortable. I seem to pull the muscle at night, and I'm almost...
  12. R

    where the heck did these numbers come from?

    Hi everyone, Before I start, let me backtrack a little. In my teens and early twenties, my FEV1 hovered around 70-75%. I could count on it dipping down into the 60's when I wasn't feeling well. I never ever thought I'd see a day when I would hit 80%. But then, by some miracle about 5 years...
  13. R

    Risk of B. cepacia

    Here is an article that came out today: <a target=_blank class=ftalternatingbarlinklarge href="http://www.nowpublic.com/health/tylenol-recall-2009-list-infant-and-childrens-tylenol-recall">Risk of B. cepacia in Infant and Children's Tylenol</a> Here are the lot #'s that are being recalled: <a...
  14. R

    Risk of B. cepacia

    Here is an article that came out today: <a target=_blank class=ftalternatingbarlinklarge href="http://www.nowpublic.com/health/tylenol-recall-2009-list-infant-and-childrens-tylenol-recall">Risk of B. cepacia in Infant and Children's Tylenol</a> Here are the lot #'s that are being recalled: <a...
  15. R

    Risk of B. cepacia

    Here is an article that came out today: <a target=_blank class=ftalternatingbarlinklarge href="http://www.nowpublic.com/health/tylenol-recall-2009-list-infant-and-childrens-tylenol-recall">Risk of B. cepacia in Infant and Children's Tylenol</a> Here are the lot #'s that are being recalled: <a...
  16. R

    vesting upside-down

    Hi everyone, Has anyone every tried vesting upside-down? My spouse (who is an RT) recommended trying that to see if it helped. The only problem I can think of with that is making sure that the vest is not touching anything because it seems to not work as well when I lean against something...
  17. R

    salt crystals

    I have one spot on my face where salt crystals build up every single day (right by my eyebrow). I highly doubt I sweat there. But I have to check my face every day and wipe off the crystals. Does anyone else have problems with salt crystals appearing like that without even sweating?
  18. R

    overweight with CF

    Hi everyone, I know many/most people with CF have a problem gaining weight, but there has to be other CFers in the same boat as me. I am pancreatic insufficient and I always had a hard time gaining weight when I was a kid/teen, but now I seem to have a problem losing weight. Before I got...
  19. R

    3 months ago - update

    Hi everyone, Well, three months ago I gave birth to my sweet little boy. It has really been quite a rollercoaster ride to go from one baby to two babies. Gavin was a colicky baby and has reflux pretty bad. We have an appointment with the peds gastro in a couple weeks, but he has improved so...
  20. R

    I'm getting the vest!

    Hi there, I'm getting my vest! It should be here tomorrow or Friday and I'm so excited. And my insurance covered it all!!! (Whew) I tried the vest at my last clinic appointment. I hadn't used it since I was at CF camp back about 15 years ago. Since I am allergic to all the good oral...
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