Cystic Fibrosis Forum (EXP)

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    Anxiety in CF Can CBD oil help?

    Anxiety in CF: Can CBD oil help? from Jim Caldwell Most CF patients experience anxiety about their health. Anxiety and depression may be increased by ingestion of many common CF drugs and therapies (1,2). Is it possible that CBD oil could help with anxiety? Cannabidiols (CBD) are reported in the...
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    Am I tired of this work?

    I still meet with my high school girl friends once a month...that's goes back along time since we graduated in 1965! Recently, at dinner, my friend Kathy had asked me about "my business" and I went on to state I'm working on an RFP for a company working with the www.ieee.org. They do the...
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    Got it

    Got it
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    Regenerating lung tissue

    https://www.nih.gov/news-events/nih-research-matters/new-stem-cell-identified-lung-tissue-regeneration#.XfBsu7NRDgw.email
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    Our new forums! Welcome

    Thanks especially to Jim Caldwell! It is a lot of work and heart to move over 2 million messages to these new forums! Please bear with us as we learn to adjust to all the new features and capabilities! Salt and light Imogene
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    Vertex available in the ??

    https://pharmaphorum.com/news/breaking-news-nhs-signs-agreement-with-vertex-covering-all-cystic-fibrosis-drugs/?utm_source=pharmaphorum+Top+Stories&utm_campaign=0cb7677924-EMAIL_CAMPAIGN_2019_07_26_03_15_COPY_01&utm_medium=email&utm_term=0_b64138c678-0cb7677924-439186353
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    UK nhs approves all vertex drugs!

    https://pharmaphorum.com/news/breaking-news-nhs-signs-agreement-with-vertex-covering-all-cystic-fibrosis-drugs/
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    Suggestions for managing CF in College

    http://cysticfibrosis.com/suggestions-help-manage-cystic-fibrosis-college/ Aimee Laurence
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    Scotland's cost regulator rejects Vertex CF Drugs

    https://pharmaphorum.com/news/scotlands-cost-regulator-rejects-vertex-cystic-fibrosis-drugs/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=4691e15288-EMAIL_CAMPAIGN_2019_07_25_12_41_COPY_01&utm_medium=email&utm_term=0_a54496134b-4691e15288-431716241 The Scottish Medicines Consortium’s...
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    Adults with CF what are your jobs?

    So glad it may work out for DS! My younger ones are enjoying it! They are creating characters for minecraft and doing some simple block programming. They are 6 and 9. Let us know if this works for DS. They have Java for the older kids. He may need help? Salt and Light Jeanne
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    Adults with CF what are your jobs?

    Thanks for the great suggestion Lance! As a Math and Computer Teacher and with 12 grandchildren, I am working with them (as young as 7 yrs old) on www.tynker.com. They love it and of course I love working with them! I am using it with my 7-11 year olds. It goes through grammar school...14...
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    International Patient

    Yendry's Friend, I have some neb equipment...please send your address and info to Info@cysticfibrosis.com Good luck finding the right meds!
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    Micah lost 7-12-12

    Thinking of you and your beautiful family. May these memories bless you! http://forums.cysticfibrosis.com/showthread.php/17569-Praying-for-Micah?highlight=Micah salt and light, imogene
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    Vertex News: SYMDECKO approved for patients 6 years and older....

    -SYMDEKO is now approved for patients 6 years of age and older with two copies of the F508del mutation or one copy of a responsive mutation--Vertex's third medicine approved to treat the underlying cause of CF in eligible patients in this age range- https://investors.vrtx.com/press-releases
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    Nasal Polyps Research

    Who Can Participate: People (18 years and older) who have been diagnosed with nasal polyps (United States only) Earn: $100.00 What is it? A 60 minute telephone interview (with webcam). It will cover your experiences and current attitudes towards the condition, drug treatments and your...
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    Profiting from Big Data in the UK

    UK public concerned about tech firms profiting from NHS...
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    CF parents start a buyers club in the UK

    https://pharmaphorum.com/news/orkambi-parents-start-buyers-club-to-import-generic-version-of-cf-drug/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=8b1c994496-EMAIL_CAMPAIGN_2019_06_05_11_31&utm_medium=email&utm_term=0_a54496134b-8b1c994496-431716241
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    Vertex: Triple combination~ Breaking News

    https://investors.vrtx.com/news-releases/news-release-details/vertex-selects-triple-combination-regimen-vx-445-tezacaftor-and
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    Data Provenance and Workflow Survey! Our Genomic Diaries! 148 participants so far!

    There are 148 participants! A $25.00 gift certificate to participant 150, 175, and 200! Participants are from: Every state except Wyoming! Countries: Canada, Philippines, Australia, South Africa Salt and Light, Imogene
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    Groundbreaking Research for CF on brink of finding universal treatment!

    https://kval.com/news/local/groundbreaking-research-for-cystic-fibrosis-on-brink-of-finding-universal-treatment Salt and Light, Imogene:o
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