Cystic Fibrosis Forum (EXP)

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  1. R

    Hill Rom VEST died :(

    So glad to hear you'll be getting a new vest so quickly. Mine has been acting funky for the past several months - just sort of losing it's pressure intermittently during a treatment. So that's good to know they can be replaced if they break!
  2. R

    Hill Rom VEST died :(

    So glad to hear you'll be getting a new vest so quickly. Mine has been acting funky for the past several months - just sort of losing it's pressure intermittently during a treatment. So that's good to know they can be replaced if they break!
  3. R

    DDF508

    Hi, I'm DDF508, 31 years old, diagnosed at 2 days old, my current FEV1 is like 85-90%, and no CFRD yet.
  4. R

    DDF508

    Hi, I'm DDF508, 31 years old, diagnosed at 2 days old, my current FEV1 is like 85-90%, and no CFRD yet.
  5. R

    girls onlyy please!!

    It's true, it's usually thicker than a non-CF woman. I remember when I was getting IUI and the nurse said, "Oh my, you are definitely ovulating - your cervical mucus is ridiculously thick!" She apparently didn't read my chart about the CF and/or didn't know about it, so that just confirmed to...
  6. R

    Are you pregnant?

    I delivered naturally and it went picture-perfect! I went into the hospital on a Sunday evening expecting to be induced (for a pregnancy-related rash I had) the next morning. However, I started cramping a little in the middle of the night and my nurse did not think it was actual contractions...
  7. R

    Adoption

    I have a FB friend who has CF who just adopted - not sure if her health was an issue in the process, but she was obviously able to adopt, which is great!
  8. R

    irregular/regular periods

    Yes, I believe this is true. I think it's usually due to the fact that a lot of CFers are malnourished/underweight, which tends to alter a woman's periods. For me, I started quite late (I think I was 16 yrs old) and was quite skinny at that age. Even when I did get my periods, they were very...
  9. R

    What to do between rounds of tobi?

    I am the same way - I cannot go without anything or else I get junky right away. Because I cannot tolerate Colistin, my doctor let me do Tobi in a cycle of 3 weeks on/1 week off (which is obviously not a traditional treatment). That way by the time the week off was over, I was definitely...
  10. R

    What to do between rounds of tobi?

    I am the same way - I cannot go without anything or else I get junky right away. Because I cannot tolerate Colistin, my doctor let me do Tobi in a cycle of 3 weeks on/1 week off (which is obviously not a traditional treatment). That way by the time the week off was over, I was definitely...
  11. R

    Cayston Finger Slicing Club

    Hahaha! Count me in the club <img src="i/expressions/face-icon-small-wink.gif" border="0"> I thought I was the only one! I think they need to make the vials a little easier for us because those vials are sharp (it's almost like a miniature version of the top of an aluminum can). I have been on...
  12. R

    Cayston Finger Slicing Club

    Hahaha! Count me in the club <img src="i/expressions/face-icon-small-wink.gif" border="0"> I thought I was the only one! I think they need to make the vials a little easier for us because those vials are sharp (it's almost like a miniature version of the top of an aluminum can). I have been on...
  13. R

    what to use to soothe irritated airways

    Tobi can be extremely irritating to the lungs/throat and I had a hard time with it as well. Definitely see if compounded tobramycin via the eFlow is an option (as stated above). I have a lot more tolerance for that than I do with Tobi, plus I think it works a ton better! Good luck!
  14. R

    what to use to soothe irritated airways

    Tobi can be extremely irritating to the lungs/throat and I had a hard time with it as well. Definitely see if compounded tobramycin via the eFlow is an option (as stated above). I have a lot more tolerance for that than I do with Tobi, plus I think it works a ton better! Good luck!
  15. R

    How far do you travel to get to your clinic?

    I drive 3-1/2 hrs to my clinic, which is in another state. I always thought I was an oddity driving so far, but I guess I'm not!
  16. R

    How far do you travel to get to your clinic?

    I drive 3-1/2 hrs to my clinic, which is in another state. I always thought I was an oddity driving so far, but I guess I'm not!
  17. R

    Reeling tonight

    So sorry Tom. You and your family are in my thoughts during this difficult time. May you find strength and peace.
  18. R

    Reeling tonight

    So sorry Tom. You and your family are in my thoughts during this difficult time. May you find strength and peace.
  19. R

    Rainbow Babies and Childrens Hosp, Cleveland OH

    Hi Erin - I have been going to RB&C since I was born and have had nothing but WONDERFUL experiences there. Having said that, I never had Dr. S. I realize he is a very "wise" doctor and has been around the block more than a few times, but I have heard similar complaints about him from my...
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