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I just want to thank you all for taking the time to read and respond to my post. I'm full of emotion. I'm upset her CF doc feels he is hitting a "brick wall" and that is unacceptable to me. She does have mycrobacterium which culd be the huge culprit making her very sick now. I dont want to lose...

I just want to thank you all for taking the time to read and respond to my post. I'm full of emotion. I'm upset her CF doc feels he is hitting a "brick wall" and that is unacceptable to me. She does have mycrobacterium which culd be the huge culprit making her very sick now. I dont want to lose...

I cant stop crying as I write this. 14 years have gone by so fast and I am running all my memories of my daughter Alyssa in my mind so I never forget. Doctors told me that he is hitting a brick wall and does not know what to do anymore. Her Fev1 is not comming up even after a bronch. He says she...

I cant stop crying as I write this. 14 years have gone by so fast and I am running all my memories of my daughter Alyssa in my mind so I never forget. Doctors told me that he is hitting a brick wall and does not know what to do anymore. Her Fev1 is not comming up even after a bronch. He says she...

Her Fev 1 has been dropping for the last year. And today after her bronchoscopy I found out that the diagnosis of mycobacterium was from a culture that was taken in October, so her Doctor did say that this might be the cuprit. He is sending a culture that he took while doing her bronch to a lab...

Her Fev 1 has been dropping for the last year. And today after her bronchoscopy I found out that the diagnosis of mycobacterium was from a culture that was taken in October, so her Doctor did say that this might be the cuprit. He is sending a culture that he took while doing her bronch to a lab...

I have a 14 yr old daughter with CF dx at birth. She has been hospitalized so mnay times in 2011 I lost track. Her FEV 1 has gone down in the low 20's. After about 2 -3 weeks in the hospital her numbers start to come up and she comes home. After about a month being home she goes back into the...

I have a 14 yr old daughter with CF dx at birth. She has been hospitalized so mnay times in 2011 I lost track. Her FEV 1 has gone down in the low 20's. After about 2 -3 weeks in the hospital her numbers start to come up and she comes home. After about a month being home she goes back into the...