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Hi! I am the mom to a 6 yr. old son with CF... Anyway, I wanted to see if anyone has heard of how this new terrible respiratory virus that is going around the MidWest might affect CF Patients? I am trying not to freak out about it, but I am so concerned... I called my son's team today and they...

Hi! I was wondering if anyone has heard what is going on with the clinical trial for the combo of the Kalydeco/VX-809 for kids ages 6 and up. Our hospital was chosen as one of the sites and my son's doctor had mentioned it a few months ago... I followed up with her about it today and she said...

Hi, Ever since my two year old son was born, when we watch him breathe in and out, there is some noticible retracting (When the chest caves a tiny bit when he breathes in). I Know his CF doc was concerned at first, and ran two bronchoscopys to make sure nothing was going on... Both came back...

Hi, My son Logan has a very fair complexion... Now, some of this could be due to his irish heritage, but I am wondering if children with CF are a little paler than the "norm?" Is it because of a vitamin deficiency? He takes his ABDEKS and vitamin D regularly, but he still seems very pale to...

Hi Everyone, The impact of my son's CF hits me at different times, and unfortunately today was one of those days. He is almost two now, and I remember right after he was first diagnosed we went to a CF Education Night at his hospital. It was a wonderful presentation that gave us a lot of...

Hi! At my 19 month old's CF clinic appt. today, we found out he had cultured pseudomonas in his lungs. I am very concerned because I worry that he is so young to have already contracted it. They prescribed him TOBI and sypro in hopes of getting rid of it. I wondered if anyone has had a...

I am just curious if anyone out there has tried/experienced PGD with IVF? My husband and I want to have more children someday, but are worried about passing CF on to another child... We have heard this is an option, but are not sure of the success rates, insurance coverage, procedure, etc...

Hi All, I can't tell you how happy I am to have found this website. As a mom to a newly diagnosed son, I have many, many questions and don't always know who to turn to. I appreciate anyone who will take the time to answer a question of mine... I am sure there will also be MANY more in the...