Cystic Fibrosis Forum (EXP)

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  1. D

    where are you/how cold is it?

    It's 75 in Phoenix. Bright blue skies. Lovin it! I remember those winter days in Michigan. Never again!
  2. D

    where are you/how cold is it?

    It's 75 in Phoenix. Bright blue skies. Lovin it! I remember those winter days in Michigan. Never again!
  3. D

    where are you/how cold is it?

    It's 75 in Phoenix. Bright blue skies. Lovin it! I remember those winter days in Michigan. Never again!
  4. D

    Just found out

    May I tell you that you have come to wonderful site to learn the types of information and support you will need for your journey with your cf child? Congratulations on taking that step. On this site you will discover that there are thousands of experiences with cf. Depending on hundreds of...
  5. D

    Just found out

    May I tell you that you have come to wonderful site to learn the types of information and support you will need for your journey with your cf child? Congratulations on taking that step. On this site you will discover that there are thousands of experiences with cf. Depending on hundreds of...
  6. D

    Just found out

    May I tell you that you have come to wonderful site to learn the types of information and support you will need for your journey with your cf child? Congratulations on taking that step. On this site you will discover that there are thousands of experiences with cf. Depending on hundreds of...
  7. D

    Planning for a Tx?

    For what it's worth, I have had a completely different experience with oxygen than what was described to you. I have used oxygen on and off for about 9 years now. I have used it for a few months at a time and been able to get off of it for long periods. This latest episode has been tougher...
  8. D

    Planning for a Tx?

    For what it's worth, I have had a completely different experience with oxygen than what was described to you. I have used oxygen on and off for about 9 years now. I have used it for a few months at a time and been able to get off of it for long periods. This latest episode has been tougher...
  9. D

    Planning for a Tx?

    For what it's worth, I have had a completely different experience with oxygen than what was described to you. I have used oxygen on and off for about 9 years now. I have used it for a few months at a time and been able to get off of it for long periods. This latest episode has been tougher...
  10. D

    Great strides letters

    Julie, I pm'd you a segment from my son's letter from last year.
  11. D

    Great strides letters

    Julie, I pm'd you a segment from my son's letter from last year.
  12. D

    Great strides letters

    Julie, I pm'd you a segment from my son's letter from last year.
  13. D

    Prayer Request PLEASE

    I am sending all good thoughts their way.
  14. D

    Prayer Request PLEASE

    I am sending all good thoughts their way.
  15. D

    Prayer Request PLEASE

    I am sending all good thoughts their way.
  16. D

    Good Bye My Friend

    oh, Jenn, my heart goes out to you. I admire your courage for supporting so many friends with cf. I hope you can find some peace in the comfort of your memories.
  17. D

    Good Bye My Friend

    oh, Jenn, my heart goes out to you. I admire your courage for supporting so many friends with cf. I hope you can find some peace in the comfort of your memories.
  18. D

    Good Bye My Friend

    oh, Jenn, my heart goes out to you. I admire your courage for supporting so many friends with cf. I hope you can find some peace in the comfort of your memories.
  19. D

    chest X ray

    Julie, I know you guys are doing everything you can to make it all work smoothly. You have a tough challenge. But, it IS a reality that Mark needs more continuous hours of sleep. 3-4 hour stretches, even if they are strung together, are not the same as one continuous 6-8 hour stretch. Is...
  20. D

    chest X ray

    Julie, I know you guys are doing everything you can to make it all work smoothly. You have a tough challenge. But, it IS a reality that Mark needs more continuous hours of sleep. 3-4 hour stretches, even if they are strung together, are not the same as one continuous 6-8 hour stretch. Is...
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