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Hello, I was wondering if anyone is or has decided to bank your baby's cord blood. I have read a few articles that state they are making advances with cystic fibrosis research, which banked cord blood would be helpful...let me know if you have or are going to bank your baby's blood, and if you...

Hello, My doctor is sending me to a Maternal Fetal Medicine doctor for monitoring until I have my baby (who will be born with CF), so he can tell if there will be bowel or instestinal obstructions. He stated surgery would have to be done immediately after birth if this was the case, and that...

Hello, My unborn baby will have CF when he is born. Has anyone had issues with their insurance covering treatments/doctors visits? Has anyone had their insurance say that the CF was a pre-existing condition? Have you had trouble getting insurance to cover medication? My husband has great...

My genetic counselor told me these are the specific mutations. Does this have any determination on how sick my baby is going to be? Since she is the Princess of Doom, she made sure to tell me that these are the "bad" mutations. Anyone else have these or know of anyone who does?

I can't stand my genetic counselor..can someone help answer some questions? Are certain gene types/mutations worse than others? How often are babies immediately born with CF? If the baby is not born with it, is there something I can do to prepare for the eventual diagnosis? I am trying to be...