Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. J

    Pulmozyme or Hypertonic Saline

    I would get an eFlow if your concern is time spent doing treatments and do both. The "certain type of mucus" is bunk as far as I know because it breaks down white blood cells in the mucus, which is present in every CFer as far as I know. eFlow info: <a target=_blank...
  2. J

    Pulmozyme or Hypertonic Saline

    I would get an eFlow if your concern is time spent doing treatments and do both. The "certain type of mucus" is bunk as far as I know because it breaks down white blood cells in the mucus, which is present in every CFer as far as I know. eFlow info: <a target=_blank...
  3. J

    Pulmozyme or Hypertonic Saline

    I would get an eFlow if your concern is time spent doing treatments and do both. The "certain type of mucus" is bunk as far as I know because it breaks down white blood cells in the mucus, which is present in every CFer as far as I know. eFlow info: <a target=_blank...
  4. J

    Will my insurance pay for Cayston?

    Did you call your insurance company to ask them if they cover it and at what percentage/co-pay? I should think they would have a better answer for your particular insurance than any of us not knowing what insurance you have. You can't just switch insurances because of one medication - that's not...
  5. J

    Will my insurance pay for Cayston?

    Did you call your insurance company to ask them if they cover it and at what percentage/co-pay? I should think they would have a better answer for your particular insurance than any of us not knowing what insurance you have. You can't just switch insurances because of one medication - that's not...
  6. J

    Will my insurance pay for Cayston?

    Did you call your insurance company to ask them if they cover it and at what percentage/co-pay? I should think they would have a better answer for your particular insurance than any of us not knowing what insurance you have. You can't just switch insurances because of one medication - that's not...
  7. J

    Does anyone see a regular pulmo for their care??

    I doubt there is more than 1 accredited/certified CF center in the city, but if there is, they should both be good. Check the CF Foundation site for their center locations.
  8. J

    Does anyone see a regular pulmo for their care??

    I doubt there is more than 1 accredited/certified CF center in the city, but if there is, they should both be good. Check the CF Foundation site for their center locations.
  9. J

    Does anyone see a regular pulmo for their care??

    I doubt there is more than 1 accredited/certified CF center in the city, but if there is, they should both be good. Check the CF Foundation site for their center locations.
  10. J

    Negative sweat test results

    a) do a full-panel genetic blood test b) run him around like a wild animal outside before another sweat test Since sweat tests aren't 100% correct either way, might as well get the genetic test.
  11. J

    Negative sweat test results

    a) do a full-panel genetic blood test b) run him around like a wild animal outside before another sweat test Since sweat tests aren't 100% correct either way, might as well get the genetic test.
  12. J

    Negative sweat test results

    a) do a full-panel genetic blood test <br />b) run him around like a wild animal outside before another sweat test <br /> <br />Since sweat tests aren't 100% correct either way, might as well get the genetic test.
  13. J

    Loss of taste

    Now I remember: It's Doribax (doripenum) that makes that taste for me - same family: <a target=_blank class=ftalternatingbarlinklarge href="http://www.rxlist.com/doribax-drug.htm">http://www.rxlist.com/doribax-drug.htm</a>
  14. J

    Loss of taste

    Now I remember: It's Doribax (doripenum) that makes that taste for me - same family: <a target=_blank class=ftalternatingbarlinklarge href="http://www.rxlist.com/doribax-drug.htm">http://www.rxlist.com/doribax-drug.htm</a>
  15. J

    Loss of taste

    Now I remember: It's Doribax (doripenum) that makes that taste for me - same family: <a target=_blank class=ftalternatingbarlinklarge href="http://www.rxlist.com/doribax-drug.htm">http://www.rxlist.com/doribax-drug.htm</a>
  16. J

    Have you seen a improvement in your FEV1 with Cayston if so how much??

    My highest PFTs in over 3 years was on my 30 minutes post-Cayston PFT during the trial after 28 days on Cayston, which took me from about 31% to 38% in a month, but then I bombed on the next drug trial I tried and had to start my PFT build-up all over again. Expect it to go down on the off month...
  17. J

    Have you seen a improvement in your FEV1 with Cayston if so how much??

    My highest PFTs in over 3 years was on my 30 minutes post-Cayston PFT during the trial after 28 days on Cayston, which took me from about 31% to 38% in a month, but then I bombed on the next drug trial I tried and had to start my PFT build-up all over again. Expect it to go down on the off month...
  18. J

    Have you seen a improvement in your FEV1 with Cayston if so how much??

    My highest PFTs in over 3 years was on my 30 minutes post-Cayston PFT during the trial after 28 days on Cayston, which took me from about 31% to 38% in a month, but then I bombed on the next drug trial I tried and had to start my PFT build-up all over again. Expect it to go down on the off month...
  19. J

    Loss of taste

    Yes, IV meds have a tendency to affect things like that, but the oral would be the first thing I'd look at as a cause. I just can't remember which IV causes metallic taste, but I don't think it's Tobra because I'm on that one every time and we alternate second drugs and I don't get bad taste...
  20. J

    Loss of taste

    Yes, IV meds have a tendency to affect things like that, but the oral would be the first thing I'd look at as a cause. I just can't remember which IV causes metallic taste, but I don't think it's Tobra because I'm on that one every time and we alternate second drugs and I don't get bad taste...
Top