Cystic Fibrosis Forum (EXP)

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  1. J

    A LouLou update

    LouLou, I am new on here and see that your posting was today. I am sooooo happy for you. I went for the study for ddf508 patients...was all set up to be in the trial filled all the paper work out had the pft levels...fev1 and the fvc were all good. Then before they were to let me know if I was...
  2. J

    A LouLou update

    LouLou, I am new on here and see that your posting was today. I am sooooo happy for you. I went for the study for ddf508 patients...was all set up to be in the trial filled all the paper work out had the pft levels...fev1 and the fvc were all good. Then before they were to let me know if I was...
  3. J

    A LouLou update

    LouLou, I am new on here and see that your posting was today. I am sooooo happy for you. I went for the study for ddf508 patients...was all set up to be in the trial filled all the paper work out had the pft levels...fev1 and the fvc were all good. Then before they were to let me know if I was...
  4. J

    A LouLou update

    LouLou, I am new on here and see that your posting was today. I am sooooo happy for you. I went for the study for ddf508 patients...was all set up to be in the trial filled all the paper work out had the pft levels...fev1 and the fvc were all good. Then before they were to let me know if I was...
  5. J

    A LouLou update

    LouLou, <br />I am new on here and see that your posting was today. I am sooooo happy for you. I went for the study for ddf508 patients...was all set up to be in the trial filled all the paper work out had the pft levels...fev1 and the fvc were all good. Then before they were to let me know if...
  6. J

    got some more bad news today

    Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED...
  7. J

    got some more bad news today

    Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED...
  8. J

    got some more bad news today

    Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED...
  9. J

    got some more bad news today

    Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED...
  10. J

    got some more bad news today

    Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED...
  11. J

    Tune up time...a little worse than regular

    Cory's mom, I probably would love to exercise but I don't have ANY energy. I am not use to this concept. I played basketball in HS for HOURS AND HOURS, go down to the courts and play from the morning till dark. Tonight I walked to the pantry for patients with my dad and brother,and got winded, I...
  12. J

    Tune up time...a little worse than regular

    Cory's mom, I probably would love to exercise but I don't have ANY energy. I am not use to this concept. I played basketball in HS for HOURS AND HOURS, go down to the courts and play from the morning till dark. Tonight I walked to the pantry for patients with my dad and brother,and got winded, I...
  13. J

    Tune up time...a little worse than regular

    Cory's mom, I probably would love to exercise but I don't have ANY energy. I am not use to this concept. I played basketball in HS for HOURS AND HOURS, go down to the courts and play from the morning till dark. Tonight I walked to the pantry for patients with my dad and brother,and got winded, I...
  14. J

    Tune up time...a little worse than regular

    Cory's mom, I probably would love to exercise but I don't have ANY energy. I am not use to this concept. I played basketball in HS for HOURS AND HOURS, go down to the courts and play from the morning till dark. Tonight I walked to the pantry for patients with my dad and brother,and got winded, I...
  15. J

    Tune up time...a little worse than regular

    Cory's mom, <br />I probably would love to exercise but I don't have ANY energy. I am not use to this concept. I played basketball in HS for HOURS AND HOURS, go down to the courts and play from the morning till dark. Tonight I walked to the pantry for patients with my dad and brother,and got...
  16. J

    got some more bad news today

    I haven't cried this much since my son was born. I found out at around 1:30am - 2:15am and all I wanted to do was choke the doctors because they have known for almost a month. I don't understand...Why hide something from ME if it's about ME!!! Thanks for the hug Melissa and did u make sure to...
  17. J

    got some more bad news today

    I haven't cried this much since my son was born. I found out at around 1:30am - 2:15am and all I wanted to do was choke the doctors because they have known for almost a month. I don't understand...Why hide something from ME if it's about ME!!! Thanks for the hug Melissa and did u make sure to...
  18. J

    got some more bad news today

    I haven't cried this much since my son was born. I found out at around 1:30am - 2:15am and all I wanted to do was choke the doctors because they have known for almost a month. I don't understand...Why hide something from ME if it's about ME!!! Thanks for the hug Melissa and did u make sure to...
  19. J

    got some more bad news today

    I haven't cried this much since my son was born. I found out at around 1:30am - 2:15am and all I wanted to do was choke the doctors because they have known for almost a month. I don't understand...Why hide something from ME if it's about ME!!! Thanks for the hug Melissa and did u make sure to...
  20. J

    got some more bad news today

    I haven't cried this much since my son was born. I found out at around 1:30am - 2:15am and all I wanted to do was choke the doctors because they have known for almost a month. I don't understand...Why hide something from ME if it's about ME!!! Thanks for the hug Melissa and did u make sure to...
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