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HI,I have been asking people on some of the message boards to e-mail Oprah Winfrey and request a show on CF. You can e-mail her by going to www.Oprah.com Just ask her for a show on CF and tell your story. Let her know about CF, what it's like to be a teen with CF, other kids reactions if...

Hi everyone,I have been asking people to e-mail Oprah to ask for a show about CF. I have been trying to raise awareness and I thought that, since she reaches so many people in so many countries, having Oprah do a show it might help someone. You can e-mail her by going to www.oprah.com and...

Hi all,I have been trying to get Oprah Winfrey to do a show about CF, those who have it and the people who love them for a while now. I am trying to raise awareness about CF. I am asking people to go to www.oprah.com Please, send her your story and ask her to do a show about CF. Tell her...

The makers of pancrease (i can't think of the company name) makes videos and other pamphlet type things, If you are looking for something geared for other kids "Mallory's 65 Roses" is good so is "Taking Cystic Fibrosis To School" For adults there is a "parent's guide to Cystic Fibrosis" but...

Hi, have you tried for medical assistance? You'd be surprised how much you can make in some states and still qualify. It may take some fighting but with 2 children with CF, you might get it. Good luck,Andrea

Hi Murgie,You are not the first person to express this type of problem. It seems that many moms take on the primary roll in terms of meds and PT and whatnot. I am surprised and disturbed at your husbands attitude though. There are many CFers who live into their 50's 60's even 70's. So, a...

Hi all,I just have to laugh with delight that the zithromax is working so well for so many people. My daughter is four with CF and she was often sick up until she was 2. She was always given augmentin first (even though it did nothing but give her diarhea and diaper rash/yeast infection) then...

Hi all,I just have to laugh with delight that the zithromax is working so well for so many people. My daughter is four with CF and she was often sick up until she was 2. She was always given augmentin first (even though it did nothing but give her diarhea and diaper rash/yeast infection) then...

Hi, I give my daughter the creon 5 at the begining (since she is awake then) and the viokase half way through. (she doesn't feed all night, we give a bolis in the evening) when I did it with the viokase at the begining and end it was worse. I think more got through without being digested that...

Hi Gina,I think being a picky eater is normal for his age, I'm not sure if it has to do with CF. My daughter at four says that she wants stuff but then won;t eat it (She always wants cheeseburgers at fast food places but never eats them - just the pickles) Do you find that he likes stuff that...