Cystic Fibrosis Forum (EXP)

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  1. R

    Moving due to CF

    Moving to improve your health is very tricky... I've done it a couple of times. We lived in Minnesota but couldn't stand the winters. The girls were healthy and never really got sick, but we thought if we went where it was warmer, they'd do even better. Our thinking was that they wouldn't be...
  2. R

    Moving due to CF

    Moving to improve your health is very tricky... I've done it a couple of times. We lived in Minnesota but couldn't stand the winters. The girls were healthy and never really got sick, but we thought if we went where it was warmer, they'd do even better. Our thinking was that they wouldn't be...
  3. R

    Moving due to CF

    Moving to improve your health is very tricky... I've done it a couple of times. We lived in Minnesota but couldn't stand the winters. The girls were healthy and never really got sick, but we thought if we went where it was warmer, they'd do even better. Our thinking was that they wouldn't be...
  4. R

    Moving due to CF

    Moving to improve your health is very tricky... I've done it a couple of times. We lived in Minnesota but couldn't stand the winters. The girls were healthy and never really got sick, but we thought if we went where it was warmer, they'd do even better. Our thinking was that they wouldn't be...
  5. R

    Moving due to CF

    Moving to improve your health is very tricky... I've done it a couple of times. We lived in Minnesota but couldn't stand the winters. The girls were healthy and never really got sick, but we thought if we went where it was warmer, they'd do even better. Our thinking was that they wouldn't be...
  6. R

    Any upcoming MAKE A WISH trips in the U.S.

    Julie, My daughter is having her wish granted in January. She is going on cruise. We are having a big party on Jan. 19th and leaving for the cruise on the 20th. I'm not sure if he wanted to do a photo shoot on the day the family leaves on a trip or wanted to go to where they are going...
  7. R

    Any upcoming MAKE A WISH trips in the U.S.

    Julie, My daughter is having her wish granted in January. She is going on cruise. We are having a big party on Jan. 19th and leaving for the cruise on the 20th. I'm not sure if he wanted to do a photo shoot on the day the family leaves on a trip or wanted to go to where they are going...
  8. R

    Any upcoming MAKE A WISH trips in the U.S.

    Julie, My daughter is having her wish granted in January. She is going on cruise. We are having a big party on Jan. 19th and leaving for the cruise on the 20th. I'm not sure if he wanted to do a photo shoot on the day the family leaves on a trip or wanted to go to where they are going...
  9. R

    Any upcoming MAKE A WISH trips in the U.S.

    Julie, My daughter is having her wish granted in January. She is going on cruise. We are having a big party on Jan. 19th and leaving for the cruise on the 20th. I'm not sure if he wanted to do a photo shoot on the day the family leaves on a trip or wanted to go to where they are going...
  10. R

    Any upcoming MAKE A WISH trips in the U.S.

    Julie, My daughter is having her wish granted in January. She is going on cruise. We are having a big party on Jan. 19th and leaving for the cruise on the 20th. I'm not sure if he wanted to do a photo shoot on the day the family leaves on a trip or wanted to go to where they are going...
  11. R

    Technical Question...

    And how would I know if that applies to my daughters? They are both DDF508...but I have never been told anything about variant alleles... I was just reading some medical journal stuff about CF and came accross that term and wasn't really sure what it meant.... Thanks for any info...
  12. R

    Technical Question...

    And how would I know if that applies to my daughters? They are both DDF508...but I have never been told anything about variant alleles... I was just reading some medical journal stuff about CF and came accross that term and wasn't really sure what it meant.... Thanks for any info...
  13. R

    Technical Question...

    And how would I know if that applies to my daughters? They are both DDF508...but I have never been told anything about variant alleles... I was just reading some medical journal stuff about CF and came accross that term and wasn't really sure what it meant.... Thanks for any info...
  14. R

    Technical Question...

    And how would I know if that applies to my daughters? They are both DDF508...but I have never been told anything about variant alleles... I was just reading some medical journal stuff about CF and came accross that term and wasn't really sure what it meant.... Thanks for any info...
  15. R

    Technical Question...

    And how would I know if that applies to my daughters? They are both DDF508...but I have never been told anything about variant alleles... I was just reading some medical journal stuff about CF and came accross that term and wasn't really sure what it meant.... Thanks for any info...
  16. R

    Daughter feeling like she can't breath...

    They just called and they have a room available and are holding it for her... woohoo! We are finally on our way... good thing too cuz she didn't sleep last night for coughing all night. I was about to be forced to take the ER route... Thanks again everyone. I'll try to update later...
  17. R

    Daughter feeling like she can't breath...

    They just called and they have a room available and are holding it for her... woohoo! We are finally on our way... good thing too cuz she didn't sleep last night for coughing all night. I was about to be forced to take the ER route... Thanks again everyone. I'll try to update later...
  18. R

    Daughter feeling like she can't breath...

    They just called and they have a room available and are holding it for her... woohoo! We are finally on our way... good thing too cuz she didn't sleep last night for coughing all night. I was about to be forced to take the ER route... Thanks again everyone. I'll try to update later...
  19. R

    Daughter feeling like she can't breath...

    They just called and they have a room available and are holding it for her... woohoo! We are finally on our way... good thing too cuz she didn't sleep last night for coughing all night. I was about to be forced to take the ER route... Thanks again everyone. I'll try to update later...
  20. R

    Daughter feeling like she can't breath...

    They just called and they have a room available and are holding it for her... woohoo! We are finally on our way... good thing too cuz she didn't sleep last night for coughing all night. I was about to be forced to take the ER route... Thanks again everyone. I'll try to update later...
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