Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. H

    Welcome Ambry Genetics

    Steve, Thank you for the information. I do not know the numbers from the sweat test results, just that they were "normal." I have requested a copy of the results so should know soon. What kind of "borderline" or near borderline results would indicate that genetic testing may be helpful? I am...
  2. H

    Welcome Ambry Genetics

    Steve, Just received "normal" test results for our daughter's sweat test though she has many of the common symptoms of cystic fibrosis and I have a family history of the disease. I still have concerns and would like to know for certain whether she has cf or is a carrier. Does Ambry maintain...
  3. H

    Arrg!

    We decided to not proceed w/ genetic testing until the sweat test results come back. We understand there's no such thing as a false-positive sweat test so we wouldn't need to do genetic testing if the sweat test is positive. What we're really hoping for is a negative sweat test, at which time...
  4. H

    Arrg!

    We decided to not proceed w/ genetic testing until the sweat test results come back. We understand there's no such thing as a false-positive sweat test so we wouldn't need to do genetic testing if the sweat test is positive. What we're really hoping for is a negative sweat test, at which time...
  5. H

    Arrg!

    We decided to not proceed w/ genetic testing until the sweat test results come back. We understand there's no such thing as a false-positive sweat test so we wouldn't need to do genetic testing if the sweat test is positive. What we're really hoping for is a negative sweat test, at which time...
  6. H

    Arrg!

    So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just...
  7. H

    Arrg!

    So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just...
  8. H

    Arrg!

    So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just...
  9. H

    Arrg!

    So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just...
  10. H

    Arrg!

    So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just...
  11. H

    Arrg!

    So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just...
  12. H

    Growth Pattern

    Am testing d/t family history (my brother passed away at age 7), her chronic respiratory infections, mucousy and foul-smelling stools, salty skin. I'm hoping there's something "nicer" out there that would cause the same symptoms. Thanks for your replies!
  13. H

    Growth Pattern

    Am testing d/t family history (my brother passed away at age 7), her chronic respiratory infections, mucousy and foul-smelling stools, salty skin. I'm hoping there's something "nicer" out there that would cause the same symptoms. Thanks for your replies!
  14. H

    Growth Pattern

    Am testing d/t family history (my brother passed away at age 7), her chronic respiratory infections, mucousy and foul-smelling stools, salty skin. I'm hoping there's something "nicer" out there that would cause the same symptoms. Thanks for your replies!
  15. H

    Growth Pattern

    Will be pursuing CF testing for my 3-year-old daughter this month. I feel ridiculous bringing it up w/ her ped in some ways because the girl is BIG for her age (38 lbs and almost 38 inches!). What have been your experiences w/ growth patterns?My research thus far seems to have turned up...
  16. H

    Growth Pattern

    Will be pursuing CF testing for my 3-year-old daughter this month. I feel ridiculous bringing it up w/ her ped in some ways because the girl is BIG for her age (38 lbs and almost 38 inches!). What have been your experiences w/ growth patterns?My research thus far seems to have turned up...
  17. H

    Growth Pattern

    Will be pursuing CF testing for my 3-year-old daughter this month. I feel ridiculous bringing it up w/ her ped in some ways because the girl is BIG for her age (38 lbs and almost 38 inches!). What have been your experiences w/ growth patterns?My research thus far seems to have turned up...
  18. H

    How Were You / Your Loved One Diagnosed?

    Thank you all for your replies. My daughter was scheduled to see her ped for her 3-year well-check yesterday but we had a significant snowstorm here in Milwaukee so her ped's office closed. She's rescheduled for Monday 12/4 so we'll see how it goes as far as her ped being willing to proceed w/...
  19. H

    How Were You / Your Loved One Diagnosed?

    Thank you all for your replies. My daughter was scheduled to see her ped for her 3-year well-check yesterday but we had a significant snowstorm here in Milwaukee so her ped's office closed. She's rescheduled for Monday 12/4 so we'll see how it goes as far as her ped being willing to proceed w/...
  20. H

    How Were You / Your Loved One Diagnosed?

    Thank you all for your replies. My daughter was scheduled to see her ped for her 3-year well-check yesterday but we had a significant snowstorm here in Milwaukee so her ped's office closed. She's rescheduled for Monday 12/4 so we'll see how it goes as far as her ped being willing to proceed w/...
Top