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I am coughing with temperature changes. It used to be drastic changes like in the winter going outside in the cold. I would cough usually to the point of vomiting. Now I am noticing it get out the shower or slight temperature changes. I take my xopenex before any temperature changes. Anyone...

What tricks do you use from not getting sick ? I am preparing to start my semester and I am curious what everyone does to stay healthy when around lots of germs. I teach about 100 different college student a day. I teach exercise science so I am adjusting form and touching sweaty people all day...

We adopted a baby last year through the foster care system. Our sons biological parents are pregnant again. They asked us if we want to adopt the second one. I am 39 with cf. I work full time college professor and have my own fitness business. I am torn on the second child. I don't know how much...

I am getting port next week. I am very active. I workout daily and own a gym and yoga studio. I am nervous about placement. For those of you who are active where did you get your port? How noticeable is it in your chest? How long before you worked out? Did you request certain port or needles...

Happy Saturday! I just recently got diagnosed with m. abscess bacteria and started treated. Was considering port, but they recommended Hickman instead since I will be accessed for a year or more for treatment. Any tips with the Hickman? My biggest question is with showering how do you cover it...

Has anyone used zyvox in an Eclipse ball? The company I use says it is too unstable. Any ideas to not use a pole Iv drip?

My husband and I are looking to start a family. I had a cancer scare earlier this year, so I had to have my cervix removed. I would most likely be unable to carry a child successfully. So we are exploring our options. My sister-in-law offered to be our surrogate which is so amazing. I am...

Happy Wednesday!!<br><br>I am curious how many of you have a handicap/disability parking pass?<br><br>I am interested because during the winter months it is hard for me to walk from a building to my car without coughing to the point of vomiting. I am not disabled, but it is hard for me to...

Happy Tuesday!!<br><br>I am planning a 5k-Turkey Trot to benefit CF.  Has anyone planned and event and got sponsorship from a CF drug company.  I am looking for bag stuffers.<br><br>Any input would be great!!<br><br><br>

Happy Thursday!!<br><br>I am scheduled for a brochoscopy next week!  I asked the dr for it and he agreed.  I have been sick for the past year, the dr thinks it is mostly from the aspergillus, but I am not completely sure!!  Two weeks ago, they started me in Cayston and I feel great! Yesterday...

Happy Sunday! I have been on Prednisone for a bit!! My blood sugars go crazy!! Have any of you found a methods of dosing that works for you while on Prednisone? I take 4 additional units when I actually take the Prednisone, but still not 100% working to control sugars!! ANy tricks that...

Happy Friday! Are there any books that have inspired you? I want a new book to read! All recommendations welcome!

Happy Sunday!! I was curious if anyone has done Caspian before? I searched, but couldn't find anything. Any stories or experiences would be great!! Pepsi

Happy Friday! I have had APBA for over 3 years and did all the steroids and anti-fungals. The steroids really messed with my blood sugar levels and are just a nightmare. I have had an allergic reaction to all the oral anti-fungals. I just started xolair last week. Today I just started...

Happy Wednesday!! I am organizing a Turkey Trot 5K to benefit CF. Woohoo<img src="i/expressions/face-icon-small-smile.gif" border="0"> My question to all of you have you ever reached out to a drug company that has CF related meds for a event donation or sponsorship. Pepsi

Has anyone tried this? I have ABPA and I am in searching for something to help.

Happy Thursday!! I am new to Pittsburgh. I want to use the Eclipse Balls, but I can not find a company that uses them. I so frustrated. Today, it put me over the edge when they brought me this old antiquated machine and I have to be hooked up for two hours when I have done the same medicine...

Happy Wednesday!! I have been feeling like crap. Shortness of breathe with exertion and low tolerance to activity. So called the Dr and got PFT's. MY FEV 1 is higher than ever (87). So did some steroids because maybe it was the Aspergilus. Felt worse. Called Dr. Did Bactrum and Cipro...

Happy Friday!! I have been talking with DR about getting on Xolair because my APBA is acting up! I have been on Prednisone and it messes up by blood sugars. My dr says there is certain criteria for IGE and Aspergillus levels in order for insurance to cover it! Does anyone know anything about...

Happy Friday!! I am so FRUSTRATED with my APBA!! I was diagnosed about two years ago!! The treatment of Predisone gave me CFRD. So I have been dealing with the Diabetes. The diabetes are in check when I am not on Predisone. My APBA was ok until this past July. It has just been a roller...