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My son will be 3 weeks on thursday.. He was born 10/28.. I was told that his newborn screen came back abnormal and he needs to be tested for CF.. I feel like there not telling me everything.. Its frusterating to me.. I seen on postings that people were told there newborn screens came back...

My son will be 3 weeks on thursday.. He was born 10/28.. I was told that his newborn screen came back abnormal and he needs to be tested for CF.. I feel like there not telling me everything.. Its frusterating to me.. I seen on postings that people were told there newborn screens came back...

My son will be 3 weeks on thursday.. He was born 10/28.. I was told that his newborn screen came back abnormal and he needs to be tested for CF.. I feel like there not telling me everything.. Its frusterating to me.. I seen on postings that people were told there newborn screens came back...

The only thing I was told by my sons dr is that his newborn screen came back abnormal for CF.. I seen alot of other people got more information at this stage.. I feel kind of left in the dark... He goes back to his dr on next wednesday so I am going to ask some questions then.. I know they...

The only thing I was told by my sons dr is that his newborn screen came back abnormal for CF.. I seen alot of other people got more information at this stage.. I feel kind of left in the dark... He goes back to his dr on next wednesday so I am going to ask some questions then.. I know they...

The only thing I was told by my sons dr is that his newborn screen came back abnormal for CF.. I seen alot of other people got more information at this stage.. I feel kind of left in the dark... He goes back to his dr on next wednesday so I am going to ask some questions then.. I know they...

Im going to do all I can to get there for the appointment in December.. I just feel real guilty if there is no way I can get to it I will just have to reschedule.. Id go tomorrow if it was up to me.. but in all reality there are certain things I cannot control right now so I might just have to...

Im going to do all I can to get there for the appointment in December.. I just feel real guilty if there is no way I can get to it I will just have to reschedule.. Id go tomorrow if it was up to me.. but in all reality there are certain things I cannot control right now so I might just have to...

Im going to do all I can to get there for the appointment in December.. I just feel real guilty if there is no way I can get to it I will just have to reschedule.. Id go tomorrow if it was up to me.. but in all reality there are certain things I cannot control right now so I might just have to...

Boy am I frusterated... I have a sweat test scheduled for Dec 6th wanted to try to get in sooner but I'm thinking its best to just keep the appointment I have.. I am having car trouble and I am not really sure when I will be able to get it fixed.. With the Akron Childrens Hospital being a little...

Boy am I frusterated... I have a sweat test scheduled for Dec 6th wanted to try to get in sooner but I'm thinking its best to just keep the appointment I have.. I am having car trouble and I am not really sure when I will be able to get it fixed.. With the Akron Childrens Hospital being a little...

Boy am I frusterated... I have a sweat test scheduled for Dec 6th wanted to try to get in sooner but I'm thinking its best to just keep the appointment I have.. I am having car trouble and I am not really sure when I will be able to get it fixed.. With the Akron Childrens Hospital being a little...

My oldest daughter does not have cf but she was on bactrim for 1 month due to recurring uti infections and she vomitted every time she took it... she never got a rash tho... I had to have them switch the medication... Her peditrician told me that even taking it with food could cause a belly ache...

My oldest daughter does not have cf but she was on bactrim for 1 month due to recurring uti infections and she vomitted every time she took it... she never got a rash tho... I had to have them switch the medication... Her peditrician told me that even taking it with food could cause a belly ache...

My oldest daughter does not have cf but she was on bactrim for 1 month due to recurring uti infections and she vomitted every time she took it... she never got a rash tho... I had to have them switch the medication... Her peditrician told me that even taking it with food could cause a belly ache...

Thanks so much for the feedback.. son still has not had a bowel movement and his last one was about 4 days ago.. Im waiting on him to have another one so I can see what it looks like just to see if it looks the same as it did before.. I still dont know what a greasy stool would look like.. I am...

Thanks so much for the feedback.. son still has not had a bowel movement and his last one was about 4 days ago.. Im waiting on him to have another one so I can see what it looks like just to see if it looks the same as it did before.. I still dont know what a greasy stool would look like.. I am...

Thanks so much for the feedback.. son still has not had a bowel movement and his last one was about 4 days ago.. Im waiting on him to have another one so I can see what it looks like just to see if it looks the same as it did before.. I still dont know what a greasy stool would look like.. I am...

Well, my son is on formula.. so I assumed his stools would come more regular but my daughter had problems getting constipated and had to switch formulas.. it could be just about anything but since I dont know I am constantly associating his symptoms with CF... But I am just going to take it day...

Well, my son is on formula.. so I assumed his stools would come more regular but my daughter had problems getting constipated and had to switch formulas.. it could be just about anything but since I dont know I am constantly associating his symptoms with CF... But I am just going to take it day...