Cystic Fibrosis Forum (EXP)

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  1. J

    What size needle do you use for your port?

    i use a 22 gage 3/4 inch needle, i always use my port for blood draws. I had my first port for 11 years and hve had my new one for bout 2yrs now however my port is located on my left lower rib. I dont have much trouble with mine except that the port moves during access due to the stiches that...
  2. J

    What size needle do you use for your port?

    i use a 22 gage 3/4 inch needle, i always use my port for blood draws. I had my first port for 11 years and hve had my new one for bout 2yrs now however my port is located on my left lower rib. I dont have much trouble with mine except that the port moves during access due to the stiches that...
  3. J

    What size needle do you use for your port?

    i use a 22 gage 3/4 inch needle, i always use my port for blood draws. I had my first port for 11 years and hve had my new one for bout 2yrs now however my port is located on my left lower rib. I dont have much trouble with mine except that the port moves during access due to the stiches that...
  4. J

    back home

    I've had my port for 9yrs so i'm a pro. As for shower u can take a shower way to keep the port dry are use some plactic medical tape and saran wrap and cover the port acces area, its ok if the tubing gets wet. Or u can use the Tegaderm HP, it a clear plastic port Dressing thats water proof...
  5. J

    Blood Clot - PICC Line - Now What

    i too had a horrible time with the huberlocks and picc lines i had eveything that could happen happen. i even had to have my last picc removed by a surgon who has to slice my arm open to get it out...after 2 yrs of not being able to hold those ivs for more then 24 hrs i had to consider a...
  6. J

    trying to do it all

    Hello jessica, My name is jessica to but i go by jess i'm 24 w/cf lung fuction is currently at 42% so i know wat your going through. It is tough and i beat myself up when i cant do the things i used to do...it is a difficult and hard situation to deal with especially if...
  7. J

    Exercise

    I've tried alot of different exercise regiments over the years but i have found a good combo that works for me. My husband bought me a total gym a few years ago so i used that to do a weight training aleast 4 times a week. How ever as my arthritis got worse it became harder to do weight...
  8. J

    Does anyone else live here?

    Central Pennsylvinia here
  9. J

    Aol Instant Messenger

    AOl s/n crazycrow2000....u may get my hubby so just ask for jess
  10. J

    CF respondsibility

    As i should have commented in my last post i dont believe in abortion except in certain cases of rape, insest or mothers life is in danger. I believe that if a person knows that there is a chance that the child would have cf or would be adversly affected by a parent with cf that the descision...
  11. J

    CF respondsibility

    To the last post...very well said...
  12. J

    CF respondsibility

    My two cents on this....I too have never been embarassed about my disease or let it run my life. I am a very happy person and i think that i'm in a way a better stronger person because of the CF. It has taught me lessons that most healthy people dont get to lean or realize. How ever i do agree...
  13. J

    Perfume and other scents

    I hear wat u're sayin....i too have the same problem....my docs say it my asmatha but i've noticed its even worse as my lung fuctions falls. I can only use certain body spray and i have to test all of my husbands colone and deoderant to make sure i can handle it. Thankfully i have neighbors...
  14. J

    treatment time

    I have a small bowl that i spit my mucus into...after i'm done with a treatment i dispose of the mucus and the tissues i've used to blow my nose during into the trash can. My doctors and i like this method because i can get a better idea of how much i bring up better then i could if i spit into...
  15. J

    Zithromax

    I'm 23 and started zithromax last november. Since then its been a great help. I was getting sick with colds,broncitis,flu,etc all the time but after i started it ive had 1 cold and it lasted 4 days and my lung fuction is holding steady. I take 500mg mon,wed,fri....but i hear others take it...
  16. J

    especially for women

    I agree with the bloating thing. I have the same problem as drea if i find jeans to fit my waist they are baggin in my butt and legs. I hate to go shopping. As for the vaginal yest infection thing lucky i havent had any much to the suprise to my doctors but i do have topical skin yeast...
  17. J

    Getting married/Medicaid SSI

    Yes this is true. I was getting SSI before i married and then 7 months after i was married they took my SSI benifits becasue my husband made to much...If i remember correclty u're elegible up to $25,000 anything after that they cut u off. Atleast in PA.
  18. J

    port IV?

    I too have a port mine is placed on my left lower ribs. I love it there. Its easy to hide and aint that visible when doing meds or something like that. I had mine for 7 yrs now and mine moves alittle to my docs say its fine as long as i'm still getting a blood return and its flushing. My...
  19. J

    port IV?

    I too have a port mine is placed on my left lower ribs. I love it there. Its easy to hide and aint that visible when doing meds or something like that. I had mine for 7 yrs now and mine moves alittle to my docs say its fine as long as i'm still getting a blood return and its flushing. My...
  20. J

    Leg Pain

    I too have been battling against the same kind of pain. It is some arthritis related to CF that they dont know much about or exactly how to treat it. I started with the pain in my late teens and as i got older it got worse, too the point that i couldnt even take care of myself because my...
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