Cystic Fibrosis Forum (EXP)

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  1. M

    On ivs 10 times so far this year..what now...

    HEY GUYS! ok so im not sure what needs to happen at this point, or if there are any options left. i hvae been on 10 rounds of iv antibiotics already this year. that is averaging once a month!!! i have a port so it isnt as troublesome to start IVs when needed, but is this my new way of life??? i...
  2. M

    Has anyone done tobi neb. just once daily

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  3. M

    really sore port after workout!??

    well so i have been working out lately at the gym. two of my classes are weight classes. i only do the 5 and 8 lb weights, so i dont feel like i am overdoing it or anything.. (we do lots of chest, shoulders, arms etc..) well when it was time to do push-ups i could not do them because the pain in...
  4. M

    Does this mean i am getting better?

    well tomorrow is my last day of the 14 days i have been on antibiotics. i am on IV meropenem and oral minocyclin. i started out getting the flu 2 days before Christmas(btw i did have the flu shot), which then turned into what i suspected was a lung infection. i never went to the doc. i just...
  5. M

    my 1st time port access...no luck and horribly painful!

    today homehealth came to access my port for the 1st time. i got it placed the 1st of august, and they placed the needle while i was under so i could immediately start iv therapy. i finished my ivs on the 11th of aug. so they came today to flush it. well the nurse couldnt get the needle in..was...
  6. M

    terrible pain in my intestines!??

    so there is no tactful way to talk about poop..but since we all have c.f here..surely no one gets grossed out! <img src="i/expressions/face-icon-small-smile.gif" border="0"> well first of all i was born with a macconium illeus (bowel obstruction) i went into surgery the day i was born and had...
  7. M

    Asking the women..higher dosage of birth control needed in Cf-ers?

    I was wondering if any of you C.F. ladies have been told, because of our unability to absorb things fully, that your birth control needs to be at a higher dose? I am not on birth control at the moment, i am on progesterone alone..this is to hopefully stop all my periods, bc my coughing up blood...
  8. M

    Vibration in my lung everytime i breath

    Well lately i have been working out really hard, but im not sure if this has anything to do with working out but it seemed to all start at the same time... I have a vibration sensation in my right middle part of my lung. It is driving me crazy!!! Every breath in or out it is humming!! i have...
  9. M

    A.D.E.K. with prenatal vitamins?

    So my C.f. nurse says i should still stay on my ADEKS while also taking my prental vitamins. I have read in my pregnancy book that taking too many vitamins can sometimes be worse than not taking any at all. So i asked my ob doc. and she suggested i only take prenatals b/c she said that too...
  10. M

    Getting pregnant and being pregnant concerns

    Hi my name is mallory, and i am new to this whole blog thing, but i find it a great way to understand yourself through other people who are so similar! I am 22 years old recently married and i want to start trying to get pregnant soon. i have to make sure a bacteria call pandorea is gone before...
  11. M

    question about getting and being pregnant

    Hi my name is mallory, and i am new to this whole blog thing, but i find it a great way to understand yourself through other people who are so similar! I am 22 years old recently married and i want to start trying to get pregnant soon. i have to make sure a bacteria call pandorea is gone before...
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