Cystic Fibrosis Forum (EXP)

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  1. L

    Went to clinic Thursday

    I went to clinic last Thursday and I brought those lab results that I posted on here. My PFT's are down some. This Thursday I will have to go in. <img src="i/expressions/face-icon-small-frown.gif" border="0"> I have been having problems with my port that I just got in August 2007. It flipped...
  2. L

    Lab Results

    I went to the doctor on Thursday. They drew some labs. They called me the next day and told me that my white blood count is high, my red blood count is high, my platelets are high, neutrophils high, and Lymphs low. I was wondering if anyone might have had this kind of lab results before and what...
  3. L

    Drug Interactions

    I found a web site that you sign up for and it's free. You put in you medications and they will let you know if any of them interact. They will also keep you doctor informed on this if you like. You will also be notified if there notifications about any of you meds. Our CF vitamins will not be...
  4. L

    Nebulized Colistin

    I have been put on nebulized Colistin twice a day bi monthly. They were going to put me on Tobi but my airways close up and I can't breathe at all. I was wondering how well the nebulized colistin works. I am really curious about this medication and I haven't heard about anyone else being on it...
  5. L

    ever turn blue?

    Everytime I excerise or intimate things I start turning blue. It starts with my lips then my face. This has really been freaking out my husband. I really don't want to talk to the doctors about this. Does anyone know what could cause this. When I was last at clinic my sat was 92. I don't know if...
  6. L

    Anyone go to UAB in Alabama

    I was wondering how many go to UAB in Birmingham, AL? What kind of opions do you have of the doctors and hospital. Since I've been going there my numbers have been steadily declining. I am trying to figure out if it's just my disease or if they could be doing something. Please let me know good...
  7. L

    anyone ever feel this way

    When I'm at the store or resteraunt people will stare at me because of my coughing. They look at me like I have some sort of plague. I've even overheard people say that it is rude to go out with a cough. I have broken down and told some people that I have CF and they look at me like I'm an...
  8. L

    Kidney Failure

    It's been a couple of years ago, but I'm curious if I'm the only person with CF to go through this. I also want to know if people are aware there is risks for this. I was on trobra, vanc, and Zoysn. They took my peek and trough and my vanc levels were through the roof. I found out that my...
  9. L

    passing out from coughing

    I am new to this site. I am 26 and have CF. I have recently gotten sick and everytime I cough I get this feeling like I'm going to pass out. I have even passed out for 2 hous. This has never happened to me before. Has anyone had this problem. If so what caused it and how to stop it.
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