Cystic Fibrosis Forum (EXP)

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  1. L

    Post embulization whoas

    So i just got back from my 2nd embolization surgery. the 1st one was back in feb of this year. after this one i have alot of chest pain if i breathe in too much and i dont quite remember that from the 1st one. anyone here have a pulmonary embolization as well and have this pain. im on oxcycodne...
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    Anyone have trouble sleeping? MUST READ

    I did for a long long time and didnt relize what it was. i was just diagnosed with RLS restless legs syndrome. when i would go to sleep i would have extra "energy" in my legs and feel the need to move them and shake them to stop the unpleasant sensations i would have in them. i found that the...
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    CF Tx Vs Non CF Tx

    I've heard that the survial rate post TX is much higher for ppl with CF mainly because we are very regimented in our ways and most of us are compliant to the medications needed to be taken post TX Because most othe candidates for TX include smokers w/ emphazema and ppl with other disorders none...
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    now my hand is numb

    im hoping this is just something non CFRD related but my left hands outermost extremety (my fingertips) are sort of numb since yesterday i was wondering has anyone else with cfrd gotten to the point where there limbs felt numb or tingly like mine do it sort of feel like i slept on it all night...
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    Embalization

    Well last night i had lied down and felt a rumble in my chest (some blood rushing) this doesnt happen all that often but its getting more frequent i began to caugh and was literally unable to breathe because of the blood coming up there was so much i was pratically drowning. it scares me a bit...
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