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I know that I have posted about this many times before, but we are seeing a new doctor in August, and I am trying to get my thoughts together. It is a doctor at the same clinic that we currently go to, so if anyone has any other suggestions near the Boston area, I would love those names as well...

DD takes gymnastics. She has a favorite teacher, who does not teach her class, but does have her on occassion. I mentioned something in passing a few weeks ago, about DD and DS having CF. She told me the next week that she did as well. DD REALLY, REALLY, REALLY wants to take private lessons from...

<P>DD (7) and DS(5) are both dx with CRMS, although their pulm. is leaning towards changing it to a cf dx. Both had high borderline sweat tests, and are having them redone in November. They both had the Ambry done, which came back with 1mutation, the S1235R. Both have a ton of symptons - both...

<P>DD has had blood off and on for a few years, but lately it has gotten much worse. Usually it is a very small amount, but last night it was dripping. I talked to GI, who said to put her on miralax (She is PI, and even with a large dose of creon has very loose stools), and they are seeing us...

<P>Jack is 5 1/2, weighs 33 pounds, and is dx with CRMS. He started camp today, which is 3 hours. They go in and out of the school, in and out of the pools, have water/popsicles breaks. It was about 72 this am, and sunny.</P> <P> </P> <P>I weighed him last night, and he was 33.2 pounds. He felt...

<P>I want to bring it up with the kids doctor when ew go back in July. Lillian is 7, and Jack is 5. Are they too young? They typically do pretty well with ivs and blood draws, but there is no way of knowing before hand how well they will do.</P> <P> </P> <P>Does this test typically give a def...