This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Joan,
My name is Karen, hello. Be sure to check with your child's Doctor, my sons Doctor says that he is not contagious to me or my other children but he would be contagious to someone else with CF. I guess this is when he has an infection or is coughing really bad is how I understood it. Are...
Hi,
My children 's Doctor's have always told us that all of our children need Flu shots, that they were considered high risk (they all three have Asthma). This was before they were dx with CF or a carrier to CF, they very much stressed for us more than in the past to get their Flu shots, they...
Jennifer,
I see that you may have been talking to9 someone about flu shots, I wasn't aware that other people besides my kids and my husband and I needed to get the shot? Is this something that your Doctor recomended or is this a wish of yours. Last year around the holidays ( my son wasn't dx...
Jan,
I'm Extemely excited to hear that your husband, Greg is doing well. I'm new to the site and it's very incouraging to hear good news.
Hope you are doing well also. Your husband seems to have alot of people pulling for him! These are great people here!!!!
Karen
~Mom to Logan 4 1/2 wc/f ...
Yes, we go to John Hopkins Hospital in Baltimore. He has had two clinic visits so far since being diagnossed in August. He was just fitted for The Vest and is doing well with that. He goes into the Hospital this Monday for about a week. Is that something that I should ask to have done, how will...
At what age was Austin diagnossed and how has he been form that point to now? When the Doctor told me that Logan tested Positive and he not only had two mutations he had three? And that out of the three two of them were unusual or rare are the words he used. Is that not normal to have three...
Hello,
Thanks for anwsering my question. Does everyone with CF get a PFT and if so is this routine or only when you are sick? My son is going into the Hospital fopr the first time on Monday for a brocioscope and for IV Antibiotics. Do you know what I should expect or what questions to ask? He...
Hey everybody,
Just wanted to say Hi, My name is Karen and my son was just recently diagnosed with CF. He will be 5 In March of 2006. I have visited your site and can't wait to talk to some people about CF. This is all still so new to me. He is going to be Hospitalized for the first time next...
Hello
Just wanted to introduce myself, my name is Karen and my son who is almost 5 was diagnossed with Cystic Fibrosis in August. I have two other children, one w/o cf or a carrier and one w/o cf but a carrier. I have been visiting your site and find it very helpful to read from other people...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.