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Our CF clinic put the request into insurance about a month ago. I was just wondering how long it took for most people to hear back?

From atypical CF to CRMS. We were at clinic today, and the doc said that although he was changing the dx., he was not changing anything else, and was still keeping them on precautions for everything. He did say that if they culture any of the main cf bugs, that they will change it to CF, but for...

We go back to clinic in two weeks, and could use some thoughts on this. DD (7) and DS (5) have been dx as atypical cf. They both had borderline and negative sweat tests. Both have huge GI issues, some lungissues. DS has had pneumonia multiple times the past 3 years, DD has had it twice a year...

We had a clinic appointment 3 weeks ago. I mentioned that DS was still coughing - it seems like he has been coughing since October. The doctor listened, thought he sounded fine, but decided to get an x-ray anyway. The x-ray showed a lot of "sludge" in his lungs, and pnuemonia in the right lung...

I have 4 kids. The oldest is adopted, so I have no worries about him. Oldest DD and YDS both have symptoms, which prompted all of the testing. I always assumed that my youngest DD was fine, and that we would test her to see if she was a carrier later, when she was thinking of having children...

So both kids were seen at clinic yesterday. They have an atypical dx, and one of my big questions for them were why was it atypical, when they seem like they have more issues than some other kids, and why are we doing nothing? So, my DD did a lung function test. This was her third. Her numbers...

DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them know when he...

DS (almost 5) is sick for the first time since getting dx. He has a very slight cough and a sinus infection. He is on antibiotics. According to the ped his lungs sound fine. Is this something you would call the clinic about when they re open on Tuesday, or just wait and let them know when he...

So, we are relatively new to all of this. We were at the CF clinic yesterday, and I did not think to ask the doctor. He told me when we are at the hospital to tell whomever we are seeing (ER, x-ray) that the kids have cf and ask to be put in a seperate room to wait. We got the letter home from...

Hi, I am new here. My DD is 6, and my DS is 4. They have both been followed at children's hospital boston since they were little. I also have a 7 year old an another 4 year old, both of whom seem very healthy. Both kids have severe pancreatic insufficiency. Lillian was on TPN for a year and a...

I hope I am doing this right/posting in the right place. I was wondering if anyone had any insight into 2 of my kids. I have 4 - they are 7, 6, 4, and 4. My 6 year old was born 3 weeks early. She started losing weight right away, and always had very mucosy stools. She had 2 borderline and 1...