Cystic Fibrosis Forum (EXP)

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  1. C

    for mamerth

    hi mamert!!i m italian girl with your own mutation.. how are you?? do you know much point are vertex trial about eterozigotic f508 mutation?? and do you know if we will be use vertex 770and 800 for our eterozigotic mutation?? answer m ethanks!
  2. C

    for ''printer''

    hi printer how are you?? i saw that you are 70 years old....how is your story? can you tell me?? i m 22 and i' diagnosticated 3 yaears ago...i'm italian girl.. thanks
  3. C

    denufosol and bronchitol

    there are someone who use denufosol and bronchitol??? please answer me...is very important!!!
  4. C

    for mamerth

    please ,can you tell me some link where i can see clinical case of our mutation?? thanke you
  5. C

    PER MAMERTH!!!

    GOOD DAY! SORRY BUT ARE NOT PRACTICE THIS CHAT AMERICAN ... NOT ABLE TO READ THE MESSAGE .. YOU CAN RETURN TO THE MESSAGE TO MY E MAIL: AGNY@LIVE.IT THANKS
  6. C

    per mamerth

    ABOUT THE DRUGS IT RELATES TO VERTEX? Elastase FECAL 216 and you ? Have you ever had hemoptysis? ME ONCE Pseudomanas HOW LONG IS THAT YOU ? PSEUDOMONAS Gives you a lot PSEUDOMONAS COUGH? Before being diagnosed had many COUGH?
  7. C

    per mamerth

    thanks for your reply. I'm an Italian girl of 22 years. until now only forum I attended Italian and I never trussed anyone with Emie same mutazioni.eppure'm not so rare. possible that in the American forum there is no one besides you and me? i tell of me: only 3 years ago I was diagnosed with...
  8. C

    new diagnosis

    Hello. I was diagnosed with cystic fibrosis at 18 anni.ora I 22.ho only pulmonary symptoms. c is qulacuno of you who have been diagnosed at an early age 'adult or adolescent? and how are you now? please reply thanks
  9. C

    for mamerth

    hello mamerth i'm italian girl with your genetic mutation, i'm diagnosicated at 18 years old,now i m 22, can I ask you how have you diagnosticated cistic fibrosis ?? please answer me thanke you
  10. C

    f508 and 2789+5g

    someone of you .have you got this mutation?? f508 and 2789+5g and hoe are you?
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